User Focused Monitoring: D Rose In Our Experience

For anyone considering service user involvement / user focused monitoring, this is a key text.

User Focused Monitoring D Rose In Our Experience (1998)

The ground-breaking project reported here represents a partnership between Kensington & Chelsea and Westminster Health Authority (KCW) and The Sainsbury Centre for Mental Health (now the Centre for Mental Health). It demonstrates that people with severe and enduring mental illness can have a voice in decisions about the mental health services they receive. It further shows that people with mental health problems can, with appropriate training and support, elicit the views of others with severe mental health problems.

Diana Rose is a social scientist and also a mental health service user. She undertakes research from the service user’s perspective. She came to the Institute of Psychiatry after pioneering user-focused research for 7 years in a London-based charity. She has developed new methodologies in order that the user ’voice’ can be more clearly heard in research. She co-directs SURE whose staff are mainly users or ex-users of mental health services as well as being scientists. She is currently working both on epistemological issues and developing ways of finding out exactly what difference user involvement in research makes to both process and outcomes as well as policy.

GV Art events

3 to 13 September 2012

Current exhibition

Theatre of the Mind

continues until 29 September

GV Art’s Theatre of the Mind season with a range of works by Rachel Gadsden in conjunction with Elastic Theatre ’s new multi-media work, JULIUS.

See our website for catalogues and press releases,

Image : Rachel Gadsden, Fury 1, mixed media on paper, 2012

Obsessive Compulsive Disorder
Intrusive Thoughts and Representation

Monday 3 September 2012, 6.30 – 8.30pmThis Roundtable event discusses the nature of obsessions, compulsions, intrusive thoughts and how these can be represented through artistic mediums. The panel will be composed of Dr. Simon Darnley, Dr. Erin Sullivan and Jacek Ludwig Scarso, founder of the Elastic Theatre Company and chaired by Art Historian, Dr Marius Kwint.
See e-invite for further details 
FREE … but RSVP is essential via

Photo by Ludovic Des Cognets. © Elastic Theatre, 2012

Elastic Theatre Workshop
Voice/Art Experiments

Thursday 6 September 2012, from 6.30 – 8.30 pmJacek Ludwig Scarso and Maya Sapone lead an original workshop in vocal exploration drawing on the creative methodologies of Elastic Theatre.  Rachel Gadsden will also attend the event, and produce an artwork inspired by the workshop. Open to all levels of experience.
See e-invite for further details
FREE … but RSVP is essential via

Photo by Ludovic Des Cognets. © Elastic Theatre, 2012

Art and Mind Symposium

Tuesday 11 September 2012

The science of optimism  – Why are humans prone to hold unrealistic expectations?

Dr Tali Sharot is our guest speaker at our Art & Mind Symposium. Tali is the author of The Optimism Bias: A tour of the irrationally positive brain, in which she attempts to answer the question ‘What is it about our brains that makes us overestimate the positive?’

Dr Sharot is a faculty member of the Department of Cognitive, Perceptual and Brain Sciences at University College, London.

Email for further details

An Evening with Rachel Gadsden
Wednesday 12 September 2012, from 6.30 – 8.30 pmThis unique event sees Rachel Gadsden introduce her exhibition and take visitors on a private tour explaining the themes and inspirations for her work.
See e-invite for further details
FREE … but RSVP is essential via

Rachel Gadsden, Terrence Soall, 2008, mixed media on canvas

Elastic Theatre Live Event

JULIUS: Meet the Company and the Characters 
Thursday 13 September 2012, from 6.30 – 9 pm

Elastic Theatre reveal the creative process behind the making of JULIUS, and perform exclusive demonstrations to provide an insight into Elastic Theatre’s fusion of performance, dance and contemporary opera.
See e-invite for further details
FREE …. but RSVP is essential via

Photo by Ludovic Des Cognets. © Elastic Theatre, 2012


As we lead up to Anxiety 2014: Art and Mental Health Festival, we are pleased to invite you to an evening screening of two films about mental health and well-being.  We are showing two films from the UK and USA.  The films are contrasting interpretations of the way that the everyday environment interacts with our mental health and wellbeing.

Overload (2011) Ivan Riches (UK) 36 min

A documentary involving service users from the Maudsley Hospital and CoolTan Arts about the stressful nature of the everyday urban environment.  Presentation and Q&A with Director Ivan Riches.

Crooked Beauty (2011) Ken Paul Rosenthal (USA) 30 min

A poetic account of the experience of bi polar disorder and its relationship to art and creativity, by San Francisco-based filmmaker Ken Paul Rosenthal.

21 September 2012, 6-9pm





SE1 1 0AB

Tube: Southwark or Borough, Buses: 344, RV1

Places are limited, RSVP: David Mendez

Make history – let’s end mental health discrimination in legislation!

We don’t think it’s fair that people affected by mental illness can be legally discriminated against. Did you know that 1 in 4 of the population is prevented from serving on a jury, becoming a company director or an MP, just because they have known mental health problems? Now, we have a one-off chance to change this, but we can’t do it alone. The law is outdated and we need to change it to show that Britain won’t tolerate mental health discrimination. On 14 September 2012 Gavin Barwell MP will put forward a Private Member’s Bill in Parliament to amend this archaic legislation. But we need 100 votes from MPs for the Bill to be passed.

Help us get your MP to #backthebill by join our campaign now >

#RT via Rethink Mental Illness

Jo Brand and Friends: Live comedy night in support of SLaM

Jo Brand brings together top comedians for Comedy Slam! in support of mental health

Date: Tuesday 23 October, 7.00-10.30pm
Venue: Queen Elizabeth Hall, Southbank Centre, London

Award winning entertainer Jo Brand, along with fellow top comedians, will deliver an unmissable night of stand-up comedy to support mental health services in South London. Confirmed acts to date include Nina Conti, the ventriloquist and stand-up comedians Alistair Barrie and Robin Ince.

Jo Brand: ‘I support SLaM because we should all be able to talk about our mental health, honestly and openly and because SLaM staff are inspirational, their common sense, unending kindness and ability to deal with very tense situations is amazing.’
Nina Conti: ‘I support SLaM because it’s important to stand up for people affected by mental health. South London and Maudsley provide the widest range of mental health services in the UK and I’m proud to be promoting them.’
Alistair Barrie: ‘I support SLaM because they provide amazing services for people, often at the end of their tether and in distress.’

Kumar Jacob, Chair of Maudsley Charity said; ‘The benefits of laughter are wide ranging, including reducing stress, boosting the immune system and connecting us with others. Please join us and these wonderful, generous comedians to improve your own wellbeing as well as help us support mental health services in South London.’

Tickets for the event, which will last approximately three hours, cost between £20 and £35.

Email to register your interest for the event, and to be informed when the box office opens.


Psychiatric hospital documentary

Afiya Trust job vacancy: urgent

We would like to remind all our network members that The Afiya Trust will be recruiting for a Service User to lead on a project funded by Time to Change.  Please see the attached advert if you would like to express an interest in applying for this position and send all replies by the end of August to

Details here: TTC advert

Kind regards,

Chris Reid
Project Support Officer and Administrator
Phone: 0207 587 1701/582 0400
follow @afiyatrust on Twitter!

SLaM Annual Public Meeting

We are writing to remind you that our APM is approaching on Tuesday 11 September 2012, 5.30 – 7.00pm at Glaziers Hall, 9 Montague Close, London SE1 9DD.
Please let us know if you are planning to attend by clicking on the link below.

Register here

This year we will be reflecting on what has happened during the last year and focusing on our plans for the future. Copies of our Annual Report and Accounts will be available at the meeting.

The main event will be followed by a reception, where you can meet SLaM’s Board of Directors and Members Council.  You will also be able to view a display showcasing arts in the Trust.

We very much hope to see you on 11 September.

If you have any further queries please contact our Communications and Media Department by telephone on 020 3228 2830 or by e-mail

Glazier’s Hall, London Bridge Click to see map

NHS Lambeth Annual General Meeting

All are welcome to the NHS Lambeth Annual General Meeting

NHS Lambeth’s next Annual General Meeting will take place on Wednesday 5 September 2012 from 3.00pm to 4.30pm at the Imperial War Museum.

The meeting will be chaired by Caroline Hewitt, Chair of NHS South East London.  Dr Adrian McLachlan, Chair of Lambeth Clinical Commissioning Collaborative Board, will talk about the performance and achievements of the last year and the development of clinical commissioning in Lambeth.

Andrew Eyres, the Managing Director of the Lambeth Business Support Unit for NHS South East London, said: “Everyone is welcome to our Annual General Meeting, where we will report on the last year, and look forward to the next. This is an opportunity for people to come and find out what’s been happening in their local NHS”.

Time will also be spent focussing on the development of integrated care and how this will improve health services for people across Lambeth.

The meeting will be held in the Cinema Room at the Imperial War Museum, Lambeth Road, London, SE1 6HZ.

An agenda, any papers and the Annual Report for 2011/2012 will be available a week before the meeting, at

People can register their attendance for the event at

For further information, please contact Tania Barnett on 020 3049 4291 or email

Read our latest e-bulletin on the Lambeth LINk website


Jeanette Threadgold

Communications and Liaison Officer

Lambeth LINk

336 Brixton Rd


Tel no: 020 7274 8522

Visit our website:

Follow us on Twitter

Mental health champions

Let’s create 100s of Mental Health Champions

Get your MP to be a local mental health champion

Today is an amazing day for mental health! Nick Clegg, our Deputy Prime Minister, is launching a mental health ‘Framework’ that we worked with government to develop.

This Framework outlines how the NHS, councils, schools, employers and other important local bodies can improve mental health across their communities. It represents a huge opportunity for us to make mental health a key local priority.

That’s why we want you to send the Framework to your MP today. Your MP represents you and should be your mental health champion.

By sharing the framework with your MP, you will be asking that he or she works with local bodies to ensure that mental health is given the attention it deserves.

Email your MP today so that they champion mental health

Warmest regards,
Karen Stalbow, Activism Manager

Please do not reply to this emailRegistered charity Number: 271028
Published by Rethink Mental Illness
a: 89 Albert Embankment, London SE1 7TP
t: 0300 5000 927

Challenging attitudes, changing lives.

Gold winning former Paralympian joins Disabled activists to target Atos

Former gold-medal winning Paralympian to join UK Uncut [1] and Disabled People Against Cuts (DPAC) [2] at ‘The Closing Atos Ceremony’. 

The two groups have vowed to shut down Atos’ HQ at Triton Square in Central London during the Paralympic Games; promising direct action, creative protest and ‘plenty of surprises’. The action will be taking place on Friday 31st August at 12:45pm.

Tara Flood, a gold-winning former Paralympian [3] has come out in support of the campaign against Atos, saying:

“It is a shocking irony that Atos is a main sponsor of London 2012 whilst destroying disabled people’s lives on behalf of the government.”

‘The Closing Atos Ceremony’ is the culmination of a week of protests organised by disabled activists targeting Paralympic sponsor Atos. The week of action, dubbed the ‘Atos Games’, will also include protests at Atos centres around the country [4], and disabled activists will be delivering a coffin full of messages to Atos from people affected by their much criticised Work Capability Assessments (WCA).

Atos have come under fierce scrutiny for their handling of the Department of Work and Pensions £100 million a year contract, assessing whether claimants for incapacity benefits are ‘fit for work’. Last year 1,100 claimants died while under compulsory work-related activity for benefit [5]; and a number of those found ‘fit for work’ and left without income have committed or attempted suicide [6]. A recent episode of Dispatches [7] revealed Atos staff being pressured into unfairly declaring people ‘fit for work’ in order to fulfil targets.

The British Medical Association [8], disabled groups, and MPs [9] have all demanded the work capability assessments end with immediate effect. The High Court also recently granted permission for two disabled people to bring a claim for judicial review against the Secretary of State for Work and Pensions, challenging the operation of the WCA [10].

Paddy Murphy, a spokesperson from DPAC said:

‘By sponsoring the Paralympics, ATOS is trying to give the impression of supporting disabled people. Don’t be fooled. They receive hundreds of millions of pounds while many disabled people are being forced to live in abject poverty because of their decisions. This is just another opportunity for them to ‘cash-in’. But we aren’t going to let them off the hook. We will make sure everyone knows what they are about.

We are challenging Atos in the courts, in parliament, online, on the streets and now at the Paralympics. The work capability assessment must end now.’

Lisa Cunningham, a UK Uncut activist said:

‘People directly affected by Atos assessments are making their anger and fear heard through an act of creative and disruptive civil disobedience. UK Uncut will be joining them to demand an end to Atos’ inhumane tests. The Government’s cuts are killing the economy, and in the case of the cuts to welfare enforced by Atos, they are killing people.

We’re not against the Paralympics. We are against the hypocrisy of Atos’ involvement, when they may soon be removing disability benefits from the people winning medals for Britain.’



Notes to editors:

Disabled people who have undergone Atos’ WCA are available to talk to the media, please contact the UK Uncut media phone for details.

Please contact UK Uncut or DPAC for more details about other events and actions during the week.

[1] UK Uncut is a grassroots anti-cuts direct action network, well-known for targeting corporate tax avoidance:

[2] DPAC is a volunteer campaign network of and for disabled people campaigning for equality and human rights for all disabled people:

[3] After representing GB at three Paralympic Games, Tara retired from competitive swimming in 1992 when she achieved a World Record in 50m Breaststroke at the Barcelona Games – a record that still stands. Tara will be available to speak to media at the event on Friday, and at another on Monday 27 August, please contact DPAC for details.








Press enquiries:UK Uncut: Tel: 07415063231 | Email: | DPAC: Tel: 07508 983 610 | Email:


My letter to depression

Dear Depression,

I wanted to write a letter to you in the hope we can come to some sort of agreement as to where we both go from here. I have written to you many times before in days of despair and days of hope, today is one of my good days when I can find the strength from within to speak to you forcefully, concisely, from the head and from the heart. If need be, I can also speak to you aggressively, just to enforce my point, but seeing as we are now old friends, I shall try to remain diplomatic at all times.

Let me start by complimenting you on the wonderful public relations team you have working for you. How you manage to cause so much pain and heartache to so many people and not get a negative reaction in the press is a testament to the work they do on your behalf. How you get away with creating a stigma against those of us who suffer is nothing short of remarkable. When we are on better terms, perhaps you can tell me how they do it?

Exactly how is it that you manage to turn the tables on people so that they are seen as weak, hopeless, worthless and even on the verge of taking their lives because you won’t let them breathe? How come you’re still not seen as the major illness you are when so many people suffer because of you?

I saw first hand how you destroyed someone with no regard, no remorse, just a relentless charge through someone’s persona. Watching someone so vibrant, loving, outgoing and confident become a shadow of the person that I loved was horrible. To make someone change in such a way and, worse of all, to do it over a long period of time so that they are not aware of it, how do you do that?

You came to me over a 2 to 3 year time span, I knew you were there but I was not ready to acknowledge your existence. Unaware of the strength I needed to halt you on your path of destruction, I allowed you to control me and my feelings until that day when you almost beat me.

The truth of the matter is that I was a beaten man, but I did not want you to claim me as another victim. From within, I found hidden strength, through the love of my wife and children, I fought back. I am lucky in that sense, but others are not as fortunate as me, it’s so hard with your uncanny knack of pinpointing someone’s weakness and going straight for it.

The good news for me, and the bad for you, is that now I’m on top. Without you I would not be writing, something I had a passion for as a young boy in school, YOU stirred my creative juices and made my mind awash with ways I could defeat you. Now I am ready to help others defeat you and most of all I am ready to show others how the weakness comes from you not themselves.

I am starting a revolution and will unite all “Depressionistas” from all walks of life in my battle. Are you ready for us this time my friend? We may seem weak as single entities but as a force we are strong and we will not be defeated. Your days of chaining us to shackles will soon be over.

Try putting a positive spin on that!

You can also follow Garry on Twitter @depressedmoose


Improving the content and context of mealtimes for in-patient service users in Lewisham

A partnership project between: The Psychosis Clinical Academic Group and TWIG Ops

Benchmarking report here: benchmarking Food Project Lewisham

Who is your NHS hero?

I’ve nominated my SLaM NHS hero via this link.

Do you have a hero you would like to be recognised? Just fill in this quick and easy form 🙂

The S.H.A.R.E. Project – a new peer support project in Lewisham – STILL SOME PLACES LEFT FOR TASTER THIS WEDNESDAY!

Hello everyone

Some of you will already be aware of The S.H.A.R.E. Project, however I know that this will be something new for quite a few of you reading this email.   As a bit of brief background:   I am based in the Ladywell Unit and have been working on peer-Led recovery projects both in the community and with in-patients since my arrival in the spring.

S.H.A.R.E. stands for Stories of Hope and REcovery.   The project participants will be sharing parts of their own story with others who also have experience of mental health problems and aims to inspire and encourage as well as provide a regular peer support space where people can learn from each other.

The project is currently recruiting service users who would be interested in taking part – either by telling their own story, or by offering to help co-ordinate the project.  This aspect includes some admin and record keeping, giving talks to SLaM staff and finding venues and opportunities for the project to attend.  Service users who are members of the Involvement Register would receive payment for some activities.   Those who are not already members would have the opportunity to join the Register.  All participants will receive training and 1:1 supervision.

There is a 2-hour taster session this Wednesday and there are still a couple of places left, PLEASE PASS THIS INFORMATION ON TO ANYONE WHO YOU THINK WOULD FIND THIS PROJECT OF INTEREST.

Following the taster, there will be three training sessions, taking place on:-



TUESDAY 11TH SEPTEMBER – 12-4PM – this last session will be held at the Ladywell Unit.

Venue:   Stanstead Lodge (Seniors), 260 Stanstead Road, Catford, London

SE23 1DD.

If people cannot make the taster they are welcome to contact me to talk about joining the Project and attending the training.

There will be further recruitment after Christmas.

Please contact me if you would like further information.

Flyer here: SHARE Project Poster

Best wishes

Vanessa Gould-Crouch

Peer-Led Recovery Project Manager

0203 228 6063

Mob:   07794 279 420.

* I am part-time and my working hours are Tuesday 9-4pm, Wednesday 9-5pm and Thursday 12.15-5pm.* Lewisham Psychological Therapies Service 4th Floor, Ladywell House University Hospital Lewisham Lewisham High Street London SE13 6LW