MindCare Dementia Services Annual Survey

Findings of the annual service user and carer feedback surveys for MindCare Dementia Services have been collated.



Have your say on the future shape of the Lambeth Social Care Hub

The  LAMBETH SOCIAL CARE HUB is holding further co-production meetings:-

The meetings will also include feedback from the two engagement meetings Healthwatch Lambeth held with Disability Advice Service Lambeth, Age UK Lambeth and the Pan Disability Forum.

Public meetings (for everyone)

  • Tuesday 17th June, 3 – 5pm at  ‘We are 336’ (336 Brixton Road)
  • Tuesday 17th June, 6 – 8pm at Lambeth Town Hall (Room 8)
  • Monday 23rd June, 11am – 1pm at Streatham Library

Focus group for Deaf and Hearing Impaired People:

  •  Tuesday 1st July, 6 – 8pm at ‘We are 336’ (336 Brixton Road)

Any queries about this David Strong, Disability Advice Service Lambeth

David.strong@disabilitylambeth.org.uk  Tel: 020 7642 0040

Alternatively do an On-line survey:-

Complete the stakeholder survey for your organisation or service


Publicise the service user survey to your users and members and please support anyone who needs help to complete it


If you need the survey electronically or in hard copy please contact tom.stannard@ageuklambeth.org.uk

Closing date for responses – Friday 27th June 2014


UK Disabled People’s Manifesto: Reclaiming Our Futures

The aim of this manifesto – developed by disabled people and their organisations across the UK – is to map the key principles, demands and commitments that disabled people and our allies can use in campaigning and lobbying. It calls on the Westminster and devolved Governments to recognise and act on their responsibilities in fully implementing the United Nations Convention on Rights of Persons with Disabilities (UNCRPD) effectively across the UK.

The manifesto uses a Social Model of Disability definition, that is: that economic, cultural and political forces work to disable people and exclude those of us with impairments or long term health conditions. We use the term disabled people in this manifesto to include those with physical, cognitive and sensory impairments, people with learning difficulties; Deaf people, deafened, hard of hearing people, mental health system users, and survivors, and others.

We recognise our commonalties in fighting for change as well as our multiple identities including: class, Black and Minority Ethnic (BME) identities, Lesbian, Gay, Bisexual and Transgender (LGBT) identities, gender, age, faith. The manifesto identifies our common cause in challenging our exclusions together.  It recognises that we do so in the context of our shared principles and under the banners of the Social Model of Disability and the Cultural Model of Deafness.

Our manifesto sets out our shared vision for an inclusive and equal society free from economic, social and cultural barriers.  It does not claim to be exhaustive or set out extensive plans and proposals. It is rather a ‘road-map’ setting out a vision for real sustainable change and alternative approaches to key areas of our lives. It is a living document that will be developed in the lead up to the 2015 elections.

Disabled people are impacted by overall austerity cuts 9 times more than the rest of the population and disabled people with the severest impairments are experiencing cuts 19 times greater compared with the rest of the population. We are losing £28 billion of essential welfare support. Our local authority, social care and other support systems are in crisis, while our rights and the opportunities to exercise those rights, are under threat as never before. In 2013 we see that austerity measures are failing the vast majority of our citizens, poverty is increasing and disabled people are seeing support stripped away as part of the imposed austerity policies. Yet, the HM Revenue and Customs estimate a ‘tax gap’ of £32 billion per year because of corporate tax evasion and avoidance whilst other tax experts put the ‘tax gap’ figure at £120 billion per year.

There are 11 million disabled people in the UK. We want to see a society that supports and enables full citizenship for all. A well-resourced and efficient welfare infrastructure is achievable. Disabled people must have the enforceable right to live independently and to live a life of full inclusion, spontaneity, choice, family, friends, education, work and community. The state must provide appropriate funding and support to enable disabled people and all people to live lives of equality, independence, and dignity.


Via Kindred Minds

summary of discussions – SLaM service user and carer advisory groups for mood, anxiety & personality disorder services, and emergency access, complex care and clinical neurosciences

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   2 of these groups produce a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed. I have attached the summaries from the May meetings.  Please circulate as appropriate.

Mood anxiety & personality disorder advisory group summary of discussions May 2014 doc

psychological medicine advisory group summary of discussions May 2014

With best wishes,


Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ


Healthwatch Lewisham: Your Voice Counts

Reference Group Meeting

Tuesday, 3 June, 2014 from 6-8pm, Civic Suite, Catford


Robin Burgess from NHS England will be explaining what Care.data is and how changes in how our data is handled affect us.

Mental Health

We will be asking you about your experiences of Lewisham’s Mental Health services and how can they be improved. The team will be talking about issues arising from our engagement such as the discharge process; CAMHS, older people’s services and access to services for homeless people.

The Health and Wellbeing Board

Find out what it’s all about and let us know what issues you would like Healthwatch to take to the Board.


Welcome and introductions

6.15pm – Cara.data. What is it? Can you opt-out, opt in or consent?

6.45pm Your views on Mental Health services in Lewisham

7.30pm – Health and Wellbeing Board Update

8pm – Close

For more information please call 020 7998 7796 or email info@healthwatchlewisham.co.uk

Email: info@healthwatchlewisham.co.uk or call 020 7998 7796 for more details.

We hope you can make it!

Thank you,

Healthwatch Lewisham

Via Matthew

Spaces available – Developing the patient voice in Southwark


I hope that this finds you well.

There are spaces available at our upcoming event on Tuesday 3 June, 6- 8pm at Cambridge House (SE5 0HF) which is for local people and GP staff, as part of National Patient Participation Group week (2 – 7 June).

This event will be an interactive and practical session for patients and practice staff. So, if you are involved in a patient group, would like to be, or simply want to find out more about raising the patient voice in Southwark come along and join us.

At the event we will be recognising the contributions local people make to their GP practice and patient groups, share examples of the good work that is happening and provide top tips to help continue to develop patient groups in the borough.

If you have any examples of good patient engagement with local practices that you want to be able to share at the event then please do get in touch and let us know. You can book your place directly online, or by calling 020 7525 7888. You can also see details on our public website as part of the get involved pages.

Kind regards,

Daniel Blagdon

Membership, Engagement and Communications

NHS Southwark Clinical Commissioning Group

Postal Address: 1st Floor, Hub 5, PO Box 64529 London SE1P 5LX

Base: 160 Tooley St London SE1 2QH

Email: souccg.southwark-ccg@nhs.net

Telephone: 020 7525 7888

Media: 020 3049 3333

Out of Hours Media07876 448 602

The best possible health outcomes for Southwark people


Healthwatch Lewisham are supporting a piece of work to promote good community health care

People do have stories of brilliant health care, extraordinary kindness or fantastic support and we would like to learn from these stories and share best practice. They would like to know when healthcare outside of the hospital made a positive difference to you and what made the difference. This may include different services working together including hospital and community health services. Excellent community health care includes support for service users, families, neighbours and communities to work together to keep healthy and manage illness.

If you have a story you are willing to share (it can be given anonymously) about healthcare outside of hospital and how this made a big difference to you, please call us (020 7998 7796) or email them at simone@healthwatchlewisham.co.uk so they can listen to your story or arrange a time to call you. Alternatively you can send your stories to the, electronically via this https://www.surveymonkey.com/s/SLH-WinningTheBestCommunityHealthCare

Via Matthew