Earlier today we notified SLaM that our last post would be on 8th September, after which the blog would be dormant until or unless we secured future funding.
SLaM responded by telling us that we had to change the blog domain address (which they knew was impossible), or to shut down the site. Leaving it dormant was not an option.
After we challenged the legality of their edict, they backtracked.
Here’s today’s emails: Corres with SLaM Comms 14th August
It’s so sad that they are trying to make us disappear, so that the blog can’t even be a historical resource.
Last month we told you about SLaM’s plan’s to pull funding from our social media on 30th September here: https://slamtwigops.wordpress.com/2014/07/07/funding-will-cease-for-our-social-media-in-less-than-3-months/
Thank you to all of you who wrote in to SLaM, asking for a reconsideration.
Later last month we updated you on the new date of 8th September here: https://slamtwigops.wordpress.com/2014/07/25/update-re-the-future-of-our-social-media/
We were called to a meeting earlier this week, at 2 days notice, which two of our team were able to make. The notes of that meeting are here: Notes of Meeting to discuss SLaM Blog. You’ll note that there was no dialogue: it was simply a meeting for SLaM to tell us of their latest decisions, lead by by the Trust Director for Patient and Public Involvement.
At that meeting, we were told of the latest plan: that there would be a cut of 50% in our funding from 8th September, which would stop altogether on 30th October. In addition we were asked to provide advice to the SLaM Comms team on setting up new, SLaM run platforms, within this new 50% funding level.
SLaM seem to fundamentally not “get” the reasons for the need for an independent service user and carer led voice, or to understand why so many of it’s current and former patients are fearful of engagement with Trust-led initiatives. We have done all we can to explain this, time and time again, and we’re incredibly sorry that we’ve not been heard, on your behalf.
Your social media team have been unable to find a way to continue our services in anything like their current forms until that date, with these cuts, so this is to let you know that the blog will stop taking postings on 8th September. Our Facebook and Twitter presence may continue until the end of October.
On a personal note, may I take this opportunity to say that for me it has been a very great pleasure to have worked with you over the last three and a half years, and to have been part of this growing community which we have helped to link up :-). I am incredibly sorry to see the blog and our other platforms go, and can’t see how new platforms, run by the Trust, can replace them, when so many people are so suspicious of their health provider, based on their own direct experience :-(.
With best wishes,