Biomedical Research Centre

We are looking for representatives to inform the work of the Biomedical Research Centre for Mental Health (BRC-MH). The BRC-MH is based across the Institute of Psychiatry and SLaM, and is funded by the National Institute of Health Research (NIHR). More information about the roles can be found in the attached documents.

Role description_Cluster representatives_Carers

Role description_Cluster representatives_Service users

We are looking for people who can provide a service user or carer perspective to the BRC programme. We are looking for people with an interest in research, and who are committed to improving biomedical research in mental health.

Further information about the BRC can be found on our website: http://brc.slam.nhs.uk/brc-home

 

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‘This Room’ – performance about OCD

LJD eflyer - Maudsley 25 June


Kindred Minds Upcoming Activities in May 2014

The following are a few dates for your diaries:

PoP-In:

a social drop-in group, no referrals – users/survivors and people experiencing mental distress are welcome, free snacks and drinks, talks and chill out time.

The next fortnightly PoP-In is THURSDAY 22nd MAY 2014

venue: Cambridge House

time: 4-6pm

WOMEN’S GROUP:

A welcoming safe space to meet, chat and have fun. Light refreshments provided. Women only.

The next Women’s Group is FRIDAY 30th MAY 2014

venue: Cambridge House

time: 12-2pm

We have a Steering Group comprised of KM members. We meet to work on the best strategic steps to get KM back into full operation. If you would like to attend these meetings please email, phone or text us on the contact details below. We welcome new members.

Best Wishes from the KM Team

Kindred Minds Project

A user-run mental health project for service user/survivors from Black and Minority Ethnic (BME) backgrounds

Tel: 07809 701 434

Email: kindredmindsproject@gmail.com

Address: Cambridge House, 1 Addington Square, Camberwell, London, SE5 0HF

Kindred Minds Project

A user-run mental health project for service user/survivors from Black and Minority Ethnic (BME) backgrounds

Tel: 07809 701 434

Email: kindredmindsproject@gmail.com

Address: Cambridge House, 1 Addington Square, Camberwell, London, SE5 0HF


Depression Awareness Week 26th April – 3rd May 2014

Matthew Mckenzie has done a video to raise awareness about depression for this important week.

 

It is very informative and well worth a watch.

 

Thank you for doing this Matthew.


Chris Jones runs a long way for Breakthrough Breast Cancer Research

I have been a carer consultant on the Involvement Register since May 2011. I have thoroughly enjoyed this – I’ve been involved in the Food Project, on the Psychological Medicine Service User Advisory Group, visited the Mother and Baby Unit, given presentations for SUITE (Service User Involvement in Training and Education) and also have had a lot of responsibility for SLaM TWIG Ops Facebook page https://www.facebook.com/SLaMTWIGOperations and our twitter feed @slamtwigops helped and supported by Matthew Mckenzie – particularly when I have been unwell.

An Involvement Register colleague, D Rosier, saw a post that I had done on my personal Facebook page and kindly suggested that I do a blog post in order to raise awareness.

I was diagnosed with breast cancer when I was 44 in 2005 and underwent a lumpectomy and radiotherapy. My oncologist told me that I was very unlucky to get it at a relatively young age. My prognosis then was that it was less than 5% likely to reoccur. Last October though the beastie raised its ugly head again and I had a recurrence. Now buying lottery tickets as I keep falling in the unlikely stats so surely I must be due for the unlikely event of winning the lottery!  🙂

This time I have been throwing a lot more at it – bilateral mastectomy, chemo, Herceptin, Letrozole…   I have no intention of doing it for a third time.

My lovely son, Chris, has been supportive all through this. Spending time visiting me in hospital, bringing very posh champagne for New Year (bizarrely when you are going through chemo champagne tastes particularly good!), coming to keep me company whilst being filled with toxic drugs (chemo) at an unearthly hour just after Christmas, numerous treats of lunch out – to name but a few things. Typical of my son not only does he want to be supportive but also wants to do something practical to help – and if that involves some crazy sports challenge so much the better!

Chris is doing an ultra marathon at the end of June for Breakthrough Breast Cancer Research http://www.breakthrough.org.uk/ . This is a 100km run (62 miles – more than 2 marathons) which is phenomenal distance to run in one day. It’s along the Grand Union Canal starting at Maida Vale, Nr Paddington and ending in Bletchley, Bucks. You can’t simply just get out of bed on the day and hope to run this far – it involves a huge amount of training. Chris often runs 20 miles after a full (and long)day’s work purely to train for this and aims to run 60+ miles per week to keep superfit. He has trained whilst in Kuala Lumpur on a business trip in extremely hot weather. On 7th April he ran the Brighton Marathon in three hours seven minutes purely as a “training run”. I am so proud of him.

Research is vital. Breast cancer is really sneaky – it has a habit of reappearing several years later when all appears to be well – which is exactly what happened to me. Research is coming along and purely because of good research I will benefit this time from a new “wonder drug” Herceptin. This was a very new drug when I was first diagnosed in 2005 and not widely used. Recent research has shown that even though my cancer was contained I will still benefit immensely from it. If it wasn’t for research this drug would not be available and I wouldn’t have the excellent prognosis I have now.

Chris’s JustGiving page is http://www.justgiving.com/CJ-runs-a-long-way Please take a look just to raise awareness and if you feel like donating too then even better! No donation is too small. All the bits add up!

Thank you.

Bridget Jones


Recovery college update

Hi

Following two successful pilot schemes in 2013, South London and Maudsley NHS Foundation Trust is launching the first term of the SLaM Recovery College on 28th April 2014.  The SLaM Recovery College offers mental health recovery education which is co-produced (developed and delivered) by a service user or carer and a health professional.

All of the courses and workshops are free to attend for people with a connection to SLaM as a carer/supporter, service user or staff member .  People enroling in the college attend as a student,  sharing their knowledge and experiences, while learning with people from across the trust in a supportive environment.  The SLaM Recovery College staff team consists of people who have used or currently use mental health services, and health professionals, some of which also have lived experience of mental health difficulties.

The team will be distributing course prospectuses shortly.  If you would like copies of the prospectus, please call 020 3228 2175 or email hello@slamrecoverycollege.co.uk  with a short message, your organisation name and address and we will arrange for copies to be delivered.

The SLaM Recovery College also has a website where all information about the courses, timetable  and how to enrol is online:   www.slamrecoverycollege.co.uk

Please do distribute this information to people you work with who may be interested in this exciting education opportunity.  We are available from 09:00am to 5:00pm on 020 3228 2175 to take any enquiries about the college and the courses.

Garry Ellison

Peer Recovery Trainer

South London and Maudsley NHS Foundation Trust

1st Floor Admin | Maudsley Hospital | Denmark Hill | London | SE5 8AZ

Telephone:020 3228 2175


Service User Advisory Groups – Meetings held in October 2013

The departments that manage the services at South London & Maudsley NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.

The Mood, Anxiety & Personality (MAP) Clinical Academic Group – is an organisational structure which manages services for mood, anxiety & personality disorder across the South London & Maudsley NHS Foundation Trust (SLaM). Most advisory group members have experience of using mental health services or of being a family member/carer of someone who does. Other members include senior managers. They meet every month and their aim is to keep the views of service users at the heart of all service developments and improvements. To make sure that people know what is being discussed in their meetings the group produces a brief summary of their discussions.

Matthew has done a video of the summary of the MAP CAG Service User Advisory group – October meeting:

He has also done an audio of summary of this meeting:

The Psychological Medicine Clinical Academic Group (CAG) runs services across the South London and Maudsley NHS Foundation Trust (SLaM). The services include emergency access services (such as home treatment services, A&E psychiatric liaison), complex care services (such as eating disorders, chronic fatigue, mother & baby services) and neurosciences services (such as brain injury). Advisory group members have experience of services either as service users or family members/carers. They work with the senior managers to keep the views of service users and carers at the heart of all service developments and improvements. To make sure that people know what is being discussed the group produces a brief summary of their discussion.

Matthew has done a video of the summary of the Psychological Medicine CAG Service User Advisory Group – October Meeting:

He has also down an audio of the summary of this meeting: