Healthwatch Southwark enewsletter 23 Jan 2014

  Welcome to Healthwatch Southwark’s latest enewsletter
  Hello Supporter!

We’ve had a busy time since the festivities getting back into gear with all that is happening around care services in Southwark.

1000 Lives – Lets Talk about your health and wellbeing
We need you to all please get involved with ‘1000 Lives’ – Healthwatch Southwark is working with the Health and Wellbeing board (HWB) and its partners to collect the stories of local residents around their health and wellbeing. Get involved today!

Building Our Network Update!
On December 17th we had our public form event to build our networks and conversations. We had presentations from Southwark Council around the ‘1000 Lives’ engagement and a presentation on Healthwatch Southwark’s work in partnership with the Latin American Women’s Rights Service.

Guests were also asked to share their understanding of our priority areas. Click here to read a report, a full report is available upon request. We will be holding another forum in March.

Board Chair and Lay Board Member recruitment
We are seeking people to fill the role of Healthwatch Southwark Board Chair and Lay Board Member. To show an expression of interest please contact Alvin / 020 7358 7005.

Focus Group findings
Sec-Chan our Development Officer has been working with groups to dig deeper into their experience of accessing and receiving services. Her findings are in a report that we will share with you soon.

Best wishes,

The Healthwatch Southwark team

Alvin, Sec-Chan and Chip

Local News

Local news from across the community

‘1000 Lives’ – Lets Talk about your health and wellbeing
Healthwatch Southwark is working with the Health and Wellbeing board (HWB) and its partners to collect the stories of local residents around their health.
The idea of taking this story telling approach is that it allows Southwark’s residents to tell us what matters to them in terms of their health, wellbeing and experience of health services for themselves, their families and communities.
The information will inform the next Health and Wellbeing Strategy. (Read info on the current strategy here).
We will also use this engagement opportunity to gather information around our four priorities: GP Access, Accessing Mental Health Services, Sexual Health Services focussing on HIV, Social Care for people without personal budgets. Read more and get involved.

Healthwatch Southwark Board Chair and Lay Board Member Recruitment
A new opportunity has become available and we will be taking applications for the role of Healthwatch Southwark Board Chair and Lay Board Member. Applications will be accepted from residents of Southwark to work with Healthwatch Southwark’s board maintain a strategic direction for our work going forward.
If you would like to show an expression of interest, contact Alvin Kinch – Healthwatch Southwark Manager: / 020 7358 7005

Access to meetings
Southwark Council has developed a survey for residents to tell us your views on the range of health and social care services provided in the borough, particularly your experience of accessing GP surgeries and Accident & Emergency. Access to services in Southwark is varied and with increased pressure on these services it is important to have services which truly deliver for our residents. Read more and access the survey.

March 2014 public meetings: let your voice be heard
The NHS Southwark Clinical Commissioning Group Governing Body and Health and Wellbeing Board meetings are held in public which Healthwatch Supporters and members of the public can attend. Also Healthwatch Southwark also has a seat on both boards. If there is something that you think is important to say about health and social care contact the Healthwatch Team.
Find out more.

Southwark’s new London Youth Games Disability Swimming Programme
This programme is set to inspire young disabled people to achieve their potential in swimming.  It is open to young disabled swimmers who live or go to school in Southwark and are in school years five to thirteen. The individual doesn’t have to have been part of a swimming club before – a team of experienced coaches and volunteers from Dulwich Dolphins Swimming Club will be on hand. Read more.

‘My Guide is a Guide Dog’ – for people with sight loss in Southwark
‘My Guide is a Guide Dog’ involves a trained volunteer guiding a service user for a few hours a week.  They agree aims and activities in advance, for example, attending social or leisure events. During their time together the volunteer and service user identify support which can be put in place at the end of the partnership, such as other local services or friends and family members who could be trained in sighted guiding. Read more.

Every step counts – walking for heath
We’re bringing walks to you! Walking Works! Walking is for everyone. It’s free, simple and gentle on the body. You can do it wherever and whenever you like. It’s a fun way of get-ting together with other people and a healthy way to get out and about. Read more. Join today.

Local Events

Community events and training near you

Calling all supporters – Southwark and Lambeth Integrated Care Event | Tues 28 Jan

Southwark and Lambeth Integrated Care is hosting an event  | Tues 28 January 2014, 5.30pm to 8pm at Cambridge House) to give you an opportunity to hear more about integrated care for adults, say what outcomes are important and influence future commissioning of services. To register for a place at the event email, or call 020 7525 7888. Book today.

Health and Wellbeing day at Blackfriars Settlement | Wed 29 Jan
Come and find out about healthy choices online, have some healthy food and do some healthy activities. Also find out how to get health information online with NHS Choices, no experience needed, we’ll teach you. The event is free!  Come along from 10-4, with lunch at 1.00. Everyone is welcome so please spread the word! Read more.

Introduction to Adobe Photoshop for beginners
REGISTER FOR THE 5 WEEK COURSE (For people recovering from mental health difficulties). These classes will cover: Photo Retouching, Colour Correction, Image Enhancing, Image Manipulation, Photoshop effect, Working with Images to produce eye catching posters, leaflets & flyers. Book today.

Patient Leadership Training | Wed 19 Feb
This free training session, by the NHS Southwark Clinical Commissioning Group, (CCG) is for all patients involved with Locality and Practice Patient Participation Groups in Southwark. This session will cover: National NHS, NHS Southwark CCG, CCG engagement structures, Roles and skills of PPG members.
Book today

Mental Health and Street Gangs’ workshop | 26 Feb
This workshop will focus on the mental health needs of young people involved in street gangs, the associated risks and how these can be assessed and managed. In order to do so we will consider what a gang is and what it means to be a member. Join us to be better equipped and informed on this challenging and important subject. Book today.


  National News

Keeping you up-to-date with national news

Invite Supporting family carers of people with dementia – DAA The Carers’ Call to Action

Please sign up and support the Dementia Action Alliance – The Carers’ Call to Action. DAA have 5 aims in ‘our shared vision’ to support the needs and rights for family carers. DAA will be supporting everybody, working in partnership across all organisational boundaries, to ask the right questions, explore examples of good practice and find solutions to address the needs and rights for family carers of people with dementia.
Sign up today.

Free friendship phone service for older people launched
A free 24-hour dedicated helpline for older people across the UK has been launched. ‘The Silver Line’ aims to combat loneliness in the over-65s by providing friendship, information and advice through calls to trained volunteers. Read more.

Information for Health Professionals on Personal Independence Payment (PIP)
DWP National Partnerships – Information for Health Professionals on Personal Independence Payment (PIP). Personal Independence Payment (PIP) has replaced Disability Living Allowance (DLA) for new claims from people aged 16 to 64 from 8 April 2013. The Department for Health and Pensions want to make sure you know about PIP, how the assessment process works and the key role that the health and social care sector have to play in it by providing evidence to DWP via our assessment providers.

Read more.

Extra funding for mental health nurses at police stations and courts
An extra £25 million of funding for mental health nurses and other mental health professionals to work with police stations and courts so that people with mental health and substance misuse problems get the right treatment as quickly as possible, and which helps reduce re-offending has been announced by the Government. Read more.

Patient Data to be collected from GPs
The NHS in England is to start collecting data on patient care by GPs for the first time. Hospital data is already collected but the NHS says extending the initiative to general practice will create a fuller picture. Leaflets explaining the scheme, and how people can opt out, are being sent to 26.5 million households.
Personal details will not normally be shared outside the NHS but some approved medical researchers may have access, in some circumstances. Anyone who does not want their information used can talk to their GP and those who have questions about how the data will be used can call 0300 456 3531.

Bowel Cancer UK Over 65 research project – calling for your views and experiences
Bowel Cancer UK is running a survey to gather the views and experiences of people aged over 65 who have been diagnosed with bowel cancer, as well their carers, family members and friends. This will be used to inform a report that we will be published this year which will highlight the various issues that exist for people over the age of 65 with bowel cancer.
The survey is now live, access the link here.

NHS England London Region invite to help shape commissioning – Opportunities to be involved
NHS England London Region is pleased to invite you to be a part of shaping the way we commission our directly commissioned health services. We have opportunities to participate in the following activities. Procurement Project Team Members for Redbridge & Tower Hamlets, a reading Group, a procurement Project Team. Read more

Women’s experiences of maternity care – survey results
Women’s experiences of maternity care have improved, but further progress is needed. Women’s experiences of maternity care have improved over the last three years, but progress is needed in some critical areas, the findings of a survey published by the Care Quality Commission (CQC) show. Read more.
HAVE YOUR SAY…Leadership Alliance for Care of Dying People – deadline Fri 31 Jan
The Leadership Alliance for the Care of Dying People (LACDP) is currently seeking the views of patients, families and carers, professionals and organisations as part of a planned system-wide response to the recommendations contained in More Care, Less Pathway, the independent report on the Liverpool Care Pathway. This focuses on a set of desired outcomes and guiding principles that will describe what high quality care for people should look like in the last days and hours of life. Read more and access the survey.


Recent NICE published guidance

NICE guidance and updates

Take head injuries seriously and treat quickly, says NICE – read more.

NICE autism quality standard will help tackle ‘real variation in care’ – read more.

Preventing chronic conditions among ethnic minorities and improving access to servicesread more.

National events

The latest events from across the country

Invitation to attend Health Commission evidence hearing sessions | Mon 27 Jan

The Mayor has established the London Health Commission to improve the health of Londoners and healthcare across the capital. One of the London Health Commission’s key tasks is to gather evidence and data from Londoners and other health stakeholders such as London Boroughs, MPs, patients groups, the NHS and voluntary & community sector organisations – to really understand how health and healthcare in London can be improved for everyone’s benefit. Read more.

Train the Trainer: Breast Health Promotion course | wed 5 & Thurs 6 March
This accredited course is ideal for anyone promoting health and wellbeing messages in the community. It’s designed to give trainees the confidence and skills to cascade the breast awareness message. It includes how to be breast aware, the breast screening programme and breast cancer risk factors as well as how to help overcome barriers to accessing health service. Read more.

Medicine and Me: Living with diabetic eye disease | Fri 21 March
‘Medicine and Me’ meetings aim to provide a forum in which patients’ concerns about their illness are given top priority. The meetings provide an opportunity for patients and their families to share their experiences, to hear about the latest research and to question the experts.
These meetings bring together patients, their families, carers, advocates, patient support groups, clinicians and researchers to discuss care and research issues. Book today.


Healthwatch enewsletter – 2nd September 2013

2nd September 2013, Edition 5                  Healthwatch Southwark eNews

Welcome to our E-News an update on what’s happening in your Healthwatch as well as local health and social care news and events. If you would like to be included in the next e-news, please email

Healthwatch News

Work with us – become volunteers and supporters
We are keen to hear your views and get you on board to work with us. Volunteers will help carry out functions in promotion and engagement, research and intelligence and representation and work with us to champion better health and social care services. Supporters will receive our e-news where we will share our activities, updates and local health and care news.
To become a volunteer please download the application form here, or for an application pack email: or call 020 7358 7005. You can also apply online here.

Thankyou once again to all of you who contributed to the launch event in June. We are on our way to setting our priorities so look out for this information, we will share it with you shortly.

Helpful Signposting Document
We have produced a signposting document which is an overview of how to find and access key health and social care services in Southwark. Download it here

Healthwatch Southwark will be at International Day for Older Persons | Tues 1 October

We will be there to give an update on Healthwatch Southwark and how you can get involved. There will also be updates on Adult Social Care and you will hear from inspirational older people about their contributions to the community. Read more.

Local News

Contact a Family drop-in afternoons

Contact a Family drop-ins are currently suspended until the start of the new school term at the beginning of September. If you do have any queries that you think Contact a Family will be able to help with, call Contact a Family on 0207 358 7799.

Southwark Focus group – have your say

St Thomas’s Hospital are revising the information on their maternity department webpages to have more information available for women and partners.. They are holding a focus group to discuss the changes with women who have used the service and will present their ideas.  This will be in the antenatal education room on the 16th September. Find out more, email: or call 07986 911814.

Mind/Mental Health Foundation report – Building resilient communities
This report calls for public health teams to incorporate mental health in their work plans. It brings together actions for public health teams, local authorities, Councillors, health and wellbeing boards, CCGs and VCS organisations to build resilient people and communities. The mental health and wellbeing work of Lambeth & Southwark’s Public Health team is highlighted within the report. Read the report here.

What service does the Southwark Disablement Association provide?
SDA is a user led organisation (DPULO) supporting disabled Adults with a disability living in Southwark. They provide services to support people to live independently and to reach their full potential including, benefits advice, volunteer support for befriending and support in the community, deaf Access support for people with hearing impairments. Read more.

Refused a service because you are disabled?

The SDA’s Independent Living group’s aim is to work together to support each other and work with private and public services to ensure everyone has equal access to services. The group also challenges negative attitudes towards people with seen and unseen disabilities. Find out meetings times here or contact: Malvina Edwards on 0207 525 5738 or email:

Do you know DESMOND or DAFNE? If not, we want to hear from you!

We want to understand why some people are not attending education programmes about diabetes. Lambeth and Southwark NHS run a programme ‘DESMOND’ (for people with Type 2 diabetes) and ‘DAFNE’ (for people with Type 1 diabetes). Attending an education programme is important in helping manage the condition. Read more.

DMI – Working with GP practices to support excellent diabetes care

During June and July, 90 out of a total of 94 practices across Lambeth and Southwark worked with the DMI to complete their practice action plan to improve diabetes care. Over the next six months, the DMI will be providing a range of support to practices so they can make the changes they have identified as important to improving patient care. Read more.

National News

Information and advice to help you care for an elderly person
This is a FREE UK-focused information and sign-posting website aiming to provide everything you need to know about the care of older people. From positive ways to keep older parents, friends and relatives active, healthy and maintaining their finance and legal needs in shape, through to specific information on technology, care options, local authority funding. Read more.

Channel four documentary series on mental health

With one in four people suffer from a mental health problem, a new series explores and demystifies the most profound decisions involved in treating the mentally ill. The Maudsley takes a look at mental health in Britain today, with exclusive access to a wide range of services, patients and staff at the South London and Maudsley NHS Foundation Trust (SLaM). Read more.

Risk assessments at Tesco pharmacies

Throughout a partnership with Diabetes UK, Tesco will be offering diabetes risk assessments at all Tesco pharmacies.
All you need to do is visit a Tesco pharmacy, and ask to speak to someone about a diabetes risk assessment. You will be offered a full risk assessment and support. Visit your Tesco pharmacy today, and take the next step towards a healthier lifestyle. Read more.

NHS hospitals accused of ‘hiding’ food dissatisfaction
NHS hospitals in England are hiding patient dissatisfaction. The Campaign for Better Hospital Food said NHS Trusts routinely rated their own food highly. But patient surveys showed nearly half of people were dissatisfied. The campaigners want mandatory standards introduced for hospital food, like those which already exist for prisons and schools. Read more.

Public Health Annual Conference | 10-11 September 2013, Warwick University
The PHE Annual Conference will bring together over 1000 participants from local authorities, NHS, Public Health England and partner organisations who are working to protect and improve health and wellbeing and reduce inequalities. Please visit the NICE stand where the team will be on hand to answer any questions. Read more.

Recent NICE published guidance:

New quality standard for familial hypercholesterolaemia (FH). Read more.

NICE Public Board Meeting and NICE Question Time is on Wednesday 18 September. Read more.

Indicators to improve dementia care proposed for QOF 2014/15. Read more.

Local Events

FREE event to celebrate International Day of Older Persons | Tues 1 October

The event will be opened by Councilor Catherine Macdonald and Healthwatch Southwark will be there to give an update on Healthwatch Souhthwark and how you can get involved. There will also be updates on Adult Social Care and you will hear from inspirational older people about their contributions to the community. Book today.

Disability Living Allowance workshop | Tues 10 September

The Next Disability Living Allowance Workshop is being held at Cambridge House from 9.30am to 1.00pm. DLA family workers will be there to support you to complete the DLA claim form. Book into the next DLA workshop by emailing or calling the DLA on: 020 7608 8700.

A postcard to the world – one year on
Mail Art exhibition by CoolTan Arts exploring the impact and legacy of the 2012 Olympics. A year on from the opening of the Olympics, CoolTan’s final ‘A Postcard to the World’ exhibition on this theme will review the artwork created over the last year and explore responses to the legacy of the Games. It’s on until 20th September 2013. Read more.

Dulwich Park Ride | Sun 15 September
Join this free, fun, guided bike ride, perfect for all ages and abilities. Not cycled for a while and looking for an easy way to get back in the saddle? Fancy a fun way to get your friends or kids riding? Our Easygoing rides are great for building confidence for all abilities and ages along relaxed, mostly traffic-free routes. Read more.

Help us shape physiotherapy and osteopathy services in Southwark | Wed 25 September

The Southwark NHS clinical commissioning Group is holding this engagement event at 6pm at Cambridge House. If you have used these services in the last 12 months and are registered with a GP practice in Southwark they want to hear from you. To register a place email: or call 020 7525 7188.

Influence your local NHS in Southwark | Tues 22 October

Join our public event to tell us how you think NHS Southwark CCG can best help and support people to stay healthy over the coming years. The aim is to have greater prevention and self-management and also to improve the patient experience. For more details and to book call 020 7525 7888.

Contact us

Contact the Heathwatch Southwark team:
Email:  or call: 020 7358 7005


Jo Palmer

Communications and Events Officer

Jo Palmer | Communications and Events Officer | Community Action Southwark and Healthwatch Southwark | 1 Addington Square, Camberwell, London, SE5 0HF | t: 020 7358 7023 | f: 0845 305 2160 |

CAS are recruiting for three exciting new posts. Join the CAS team apply today!

CAS’s 2013 Governance and Leadership Conference is on Wed 6th Nov. Book today.

New rules on bidding for contracts. Read the key changes and tell us what you think.

Calling for Healthwatch Southwark volunteers – Join us today.

Join CAS | Follow CAS on twitter @casouthwark | CAS on Facebook

Become a Healthwatch Southwark Supporter | Join twitter @HWSouthwark | Join Facebook

Community Action Southwark is a registered charity (no. 1105835 and a company limited by guarantee in England and Wales (no. 5090324). Registered office address as above.

NICE publish first guideline for psychosis and schizophrenia in children and young people

Everyone who read the extracts from Michael Schofield’s memoir, published by the Guardian on January 19th, must surely have been moved by the sometimes harrowing description of his daughter Janni who was diagnosed with child-onset schizophrenia aged just 7 years old.

Janni is an exception, as schizophrenia generally starts between the ages of 15 and 35 in the 1% of the population who have the condition over a lifetime.

Care of children and young people with psychosis and schizophrenia has been patchy in the past and there are a number of health inequalities that exist in this group. The illness is not always diagnosed early on and so effective treatments are often delayed, which can have a huge and sometimes lifelong impact on the young service user and their family.

The new NICE guideline contains a number of key priorities for implementation, including recommendations relating to:

  • Referral from primary care for possible psychosis
  • Treatment options for symptoms not sufficient for a diagnosis of psychosis or schizophrenia
  • Referral from primary care for first episode psychosis
  • Treatment options for first episode psychosis
  • How to use oral antipsychotic medication
  • Treatment of subsequent acute episodes of psychosis or schizophrenia
  • Education, employment and occupational activities for children and young people with psychosis and schizophrenia

The headline recommendations are:

  • GPs should refer patients who present with psychotic symptoms or other experiences suggestive of possible psychosis without delay to a specialist mental health service
  • Specialist services include Child and Adolescent Mental Health Services (CAMHS) for those up to 17 years of age, or an early intervention in psychosis service for those 14 years or over, which includes a consultant psychiatrist with training in child and adolescent mental health
  • Children and young people with a first presentation of sustained psychotic symptoms lasting 4 weeks or more should also be referred urgently from primary care to a CAMHS or an early intervention in psychosis service
  • Cognitive behavioural therapy (CBT) should be offered instead of antipsychotic drugs for children and young people with psychotic symptoms or mental state changes that are not sufficient for a diagnosis of psychosis or schizophrenia
  • Oral antipsychotic medication should be offered to children and young people with an acute exacerbation or recurrence of psychosis or schizophrenia, in conjunction with psychological interventions (family intervention with individual CBT)
  • Before referral for hospital care, healthcare professionals should consider alternative care within the community wherever possible, especially when the inpatient unit is a long way from where the patient lives

Professor Tim Kendall who facilitated the guideline development group said:

There are some groups of young people who are especially prone to breaking down into a psychosis; and when they seek help, we can now say that antipsychotics should not be given to them.

Instead, CBT for the family and the individual has the greatest chance of preventing high risk young people from converting to psychosis.

We are also much clearer about the place of antipsychotics in the treatment of psychosis and schizophrenia: these drugs have quite severe side effects and need to be used with caution, especially in the young as the side effects can be especially severe. This guideline has really improved our confidence in what we should and shouldn’t do.

The guideline recommendations have been incorporated into a NICE pathway (if you’re that way inclined) and there’s the usual range of implementation tools and resources available on the NICE website for readers who want detailed documents such as Treatment manuals for CBT for children and young people with psychosis or schizophrenia.


Psychosis and schizophrenia in children and young people: recognition and management (PDF). NICE CG155, 23 Jan 2013.

Psychosis and schizophrenia in children and young people overview. NICE pathway, Jan 2013.

Aripiprazole for the treatment of schizophrenia in people aged 15 to 17 years (PDF). NICE TA213, Jan 2011.

Schofield, M. January First: A Child’s Descent Into Madness And Her Father’s Struggle To Save Her. Guardian Books, 2013.

#RT via Bridget via