Mood, Anxiety & Personality Services – SLaM mental health service user and carer advisory group – summary of discussions – September 2013

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Mood, Anxiety & Personality (MAP) department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ

The Service User and Carer Advisory Group is part of the Mood, Anxiety & Personality (MAP) Clinical Academic Group – an organisational structure which manages services for mood, anxiety & personality disorder across the South London & Maudsley NHS Foundation Trust (SLaM). Most advisory Group members have experience of using mental health services or of being a family member/carer of someone who does. Other members include senior managers.  We meet every month and our aim is to keep the views of service users at the heart of all service developments and improvements. To make sure that people know what we are discussing in our meetings we have developed this short briefing sheet:

1)    Ten service user/carer consultants were present at the September meeting, plus the Clinical Governance Project Officer, the Manager for Lewisham Services, the Manager for Southwark Services, and the Patient & Public Involvement Lead. Apologies were received from 5 service user/carer consultants and 3 staff members.

2)    Group members have been checking what it is like in reception areas of community teams.   We discussed their findings and agreed that it is important to make sure that real improvements arise from this work.  A smaller group will meet with the head of nursing to agree some overall objectives.  There will then be a workshop with service managers, advisory group members and receptionists to come up with local action plans to improve reception areas. We agreed that where training is recommended, it is important that service users and carers are involved in developing and delivering it.

3)    We heard about the initial findings of an audit of how people were discharged from Southwark Community Teams to primary care.  A group member has been involved in developing this work, in conjunction with the Southwark MIND User Council.  We noted the poor communication about discharge processes.  The next step will be to get some qualitative data by running some focus groups.

4)    We held a broader discussion about how services are set up, noting: ‘when you are getting better, you are at your most vulnerable as you are likely to have services reduced or removed. This promotes a culture where ill health is ‘rewarded’ with support’   We discussed a more flexible model where ‘the focus was on producing health rather than responding to illness and people using services were seen as assets with expertise as well as needs.’

5)    2 members fed back about the work they are doing around the personality disorder pathway. Key recommendations include:

  1. a.    people should be able to access what they need, at the point of need rather than signing up for a prescribed programme only
  2. b.    The emphasis should be on supporting wellbeing rather than crisis management
  3. c.    Services need to be realistic, financially viable and practical – perhaps a central hub – people may need to travel

There will be an outline paper for discussion and we have developed a plan to harness the views of a wider range of stakeholders to feed into the developments.

PDF version here: Briefing Sheet Sept 2013


Mood, Anxiety & Personality Services – SLaM mental health service user and carer advisory group – summary of discussions – July 2013

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Mood, Anxiety & Personality (MAP) department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ

 

Service User and Carer Advisory Group : Supporting people who use Services for Mood, Anxiety & Personality

Disorders, through collaborative work with Service Managers

The Service User and Carer Advisory Group is part of the Mood, Anxiety & Personality (MAP) Clinical Academic Group – an organisational structure which manages services for mood, anxiety & personality disorder across the South London & Maudsley NHS Foundation Trust (SLaM). Most advisory Group members have experience of using mental health services or of being a family member/carer of someone who does. Other members include senior managers. We meet every month and our aim is to keep the views of service users at the heart of all service developments and improvements. To make sure that people know what we are discussing in our meetings we have developed this short briefing sheet:

Seven service users, one carer consultant were present, plus SLaM PPI Lead, Dep. Director, Psychiatrist (Affective Disorders), Clinical Governance Proj. Officer, and Head of Nursing

Proposed merger of Kings Health Partners (KHP) Organisations– update circulated

Personality Disorder Pathway Development Group– valuable work to date will form the basis of developing some broad suggestions to take to the strategic executive management meeting with input from Advisory Group members.

MAP CAG services presentation – a review of current services and new developments, including winning the retender for the Improving Access to Psychological Services in Lambeth and Croydon; restructuring borough-based psychological therapy teams; decommissioning two unviable inpatient units; and increasing beds in the Anxiety Disorder Unit. We heard about the proposed forthcoming work to redevelop the assessment & treatment services.  Stakeholder feedback will be part of the process to help improve access, assessment, treatment and patient experience (including out-of-hours support).  There will be a restructure of day services and the introduction of ‘re-ablement’ services, working towards social inclusion, personal budgets, specialist reviews of medication for people in primary care, co-production of care plans, and easy access to crisis and support services for people in primary care

Bi-polar pathwayKarine Macritchie, the new SLaM Consultant Psychiatrist for Affective Disorders will be working with Professor Allan Young to improve and develop the care pathway for people with bi-polar disorder. The aim is to develop research and improve clinical programmes at the same time.  Service User/Carer participation will be vital as the local networks develop and focus groups are held.  Alice will co-ordinate this ongoing involvement work.  Our thanks to Karine, who is welcome to come back to the group for an update

Discharge Audit – should be completed in the next few months. Reception Audit– complete and recommendations will go to Governance Executive Meeting in September.

Service Development Updates –consultation and focus groups have contributed to the development of the Integrated Psychological Therapies quality indicators, and a new information leaflet has been drafted.

Feedback was received from the Trustwide Involvement Group, the Family and Carers Listening Event, the Recovery College and the recent Peer Support Event.  It was all encouraging and further derails can be obtained by asking Alice (see below)

It was agreed that it could be a useful idea to hold a cross CAG advisory group meeting for all members of the adult mental health service user and carer advisory groups.

PDF version here: Briefing Sheet July 2013


Mood, Anxiety & Personality Services – SLaM mental health service user and carer advisory group – summary of discussions – June 2013

Hello all,

The departments that manage the services at South London & Maudsley NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Mood, Anxiety & Personality (MAP) department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

Briefing Sheet June 2013

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ


Psychological Medicine – SLaM mental health service user and carer advisory group – summary of discussions – June 2013ad

Hello all,

The departments that manage the services at South London & Maudsley NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Psychological Medicine department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

briefing – June 2013

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ


SLaM mental health service user and carer advisory group (MAP) – summary of discussions – May 2013

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Mood Anxiety and Personality Disorder department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

Briefing Sheet May 2013

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ

Key points from May Meeting:

1)    Eight service user/carer consultants were present at the May meeting, plus the Deputy Director and the Public & Patient Involvement Lead.

2)    Following up from the last meeting, we have asked to find out about the communications and engagement plan around the proposed merger between

SLaM, Kings and Guys and St.Thomas’s. We were also glad to hear that senior staff would be taking a ‘lead’ role to improve the communications across the services within each borough.

3)    6 members met to discuss how service/carer user consultants can be better supported in their work. Some suggestions included using the Wellbeing Recovery Action Plan, peer support and mental health first aid training. Their ideas will be shared with the Psychological Medicine Advisory Group and with the staff working on improvements to the involvement register.

4)    Members of the group identified particular areas of interest – community mental health teams, work on the personality disorder pathway and work on the bi-polar disorder pathway.

5)    2 members fed back about the work they are doing to understand people’s experience of the reception areas in community mental health settings. They are making unannounced visits to reception areas and observing how staff interact with service users, how much information is available and how the physical environment can impact on peoples experience. When finished they will produce a report and work with staff on action planning.

6)    2 members will join a group working on the personality disorder pathway. In an initial meeting with the chair of this group they discussed experience of diagnosis, stigma, lack of information for staff and service users, available and future treatments and the link with education in maintaining wellbeing. The advisory group acknowledges the need to engage a wider group of stakeholders in this work as it progresses.

7)    We heard about the focus groups being organised by the psychological therapies service user experience working group. This is to gain wider feedback on some quality indicators that have been drafted. A member fed back about an internal review of progress of the newly reconfigured Integrated Psychological Therapy Teams.

8) We heard about the work that SLaM is doing to set priorities under a new ‘Equalities Delivery System’.


SLaM mental health service user and carer advisory groups – summary of discussions – April 2013

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Psychological Medicine Department and the Mood Anxiety and Personality Disorder departments advisory groups produce a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

Psych Med briefing here: briefing – April 2013 – doc

MAP briefing here: Briefing Sheet Apr 2013

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ


Service user and carer advisory group – mental health services for mood, anxiety & personality disorder – March summary of discussions

Hello

The Service User and carer Advisory Group is part of the Mood, Anxiety & Personality (MAP) Clinical Academic Group – an organisational structure which manages services for mood, anxiety & personality disorder across the South London & Maudsley NHS Foundation Trust (SLaM). The Advisory Group members have experience of using mental health services or are family members or carers of people who do.  They meet every month and work with the senior management of the mood, anxiety & personality disorder services to keep the views of service users at the heart of all service developments and improvements.

I have attached the briefing from the March MAP CAG service user/carer advisory group meeting – this summarises the discussions that were held.. Please do print off and make available to service users/carers/user groups etc.

1)Four service user consultants were present at the March meeting, plus the Public & Patient Involvement (PPI) Lead, the clinical governance project officer, MAP services managers from Croydon and Southwark and the Strategic PPI Lead for the Trust. Apologies were received from 3 members.

2)We heard that, following the recent recruitment exercise 11 new service user/carer consultants would be joining the group. We discussed the introductory meeting to be held in April and agreed that it was important not to give too much information ,and to give people an opportunity to get to know each other.

3) We heard about the plans to take forward the review of the involvement register and highlighted the need for service user consultant representation on the management group overseeing this work. We also noted the importance of developing pathways through involvement and good support systems for those people who are regularly  undertaking involvement work.

4) We heard about a new piece of work to improve the experience of people in reception areas. One of the new members of the advisory group is working with the clinical governance project officer on this.

5) We discussed the importance of giving a clear message to people using psychological therapy services about when information may need to be shared if there is a risk to self or others. We agreed that this could be taken up in more detail by the psychological therapy teams patient information working group.

6) A member fed back about the plans of the psychological therapies service user experience group to hold a focus group to check out their proposed quality indicators and some formats for questionnaires.

7) The Centre for Anxiety Disorders and Trauma have asked for support in running a focus group to explore their satisfaction survey results. A member of the advisory group will be co-facilitating the focus group.

8) We heard how the MAP community teams in Croydon were gaining feedback from the Hear Us linkworkers and satisfaction questionnaires. We suggested that they run a service user forum to get ideas about how this feedback can be turned into improvements. Members of the advisory group would be happy to assist. We also highlighted the importance of letting people know the outcome of satisfaction questionnaires.

PDF version here: Briefing Sheet Mar 2013

With best wishes,

Alice

Alice Glover
Patient & Public Involvement Lead
Mood Anxiety & Personality CAG and Psychological Medicine CAG

email:  alice.glover@slam.nhs.uk tel: 020 3228 0959

113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ