Please find attached details of the National Carers’ Conference in Eating Disorders as outlined below. Please do pass this on to anyone who you think would be interested in attending. Many thanks. Best wishes Veronica
National Carers Conference in Eating Disorders
Sponsored by Ellern Mede Ridgeway
on Friday 21st November 2014
Professor Janet Treasure OBE and Gill Todd RMN, MSc,
invite you to a day discussing
“Living with an Eating Disorder”
Eating Disorders & Carers
07733 260 475
We are reposting this as it disappeared, we think due to the recent WordPress blip.
The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments. The Psychological Medicine department advisory group produces a brief summary of their discussions. The purpose is to let interested people know what is being discussed. Please circulate as appropriate.
The Psychological Medicine Clinical Academic Group (CAG) runs services across the South London and Maudsley NHS Foundation Trust (SLaM). The services include emergency access services (such as home treatment services, A&E psychiatric liaison), complex care services (such as eating disorders, chronic fatigue, mother & baby services) and neurosciences services (such as brain injury). Advisory group members have experience of services either as service users or family members/carers. We work with the senior managers to keep the views of service users & carers at the heart of all service developments and improvements. To make sure that people know what we are discussing in our meetings, we have developed this short briefing sheet:
Six people with experience of using services or being a family member/carer were present at the June meeting. Also present were the Patient & Public Involvement Lead, the Local Security Management Specialist and the Corporate Clinical Audit Project Officer. Apologies were received from two staff members.
- We heard about how the experience of informal patients had been checked. The findings were that most patients who wanted to leave the ward were able to, and most people who refused a treatment offered had their preferences respected. However, people were not routinely being given information about their rights as an informal patient. We were interested to find out more about how the threat of sectioning can be used to gain compliance in the ward for informal patients and were heartened that this had been identified as an issue for further work. Members of the group are interested to be involved in further work on this.
At our request, the local security management specialist came to the meeting and told us about the mental health and policing liaison structures and some key recommendations from the Independent Commission on Mental Health & Policing by Lord Victor Adebowale. As a result of discussions, we have asked to be informed about the level of service user involvement in training for police, and we will be offered an opportunity to attend the Trustwide Police Liaison Committee to bring themes from service users. We will seek feedback from service users via linkworkers, peer supporters, the service user blog and develop a more formal audit.
The group welcomed the draft satisfaction questionnaire for psychiatric liaison services at A&E. Members of the group have worked with staff on this and the result is a one side of A4, user friendly template. Further work needs to be done to finalise the innovative design on the template.
We heard that 2 members of the group had presented their findings about the Mother and Baby Unit (MBU) at a senior management meeting – on the whole they found the MBU to be a positive and therapeutic environment. Issues identified included staff shortages, lack of activities and some environmental issues. The group members have been invited back to the unit later in the year.
At a workshop on the mental health element of the A&E service at St.Thomas’ Hospital, service user consultants suggested Mental Health First Aid Training for all A&E staff as well as a quiet space in the waiting area for adults with autism.
A carers representative has been involved in delivering training to staff and giving a carers perspective to the mental health act team. Another carers representative is now on the Members council. A new SLaM Family and Carers handbook has been printed.
Group members fed back about the recent SLaM peer support event which had been extremely well attended and will be the starting point for an ongoing network.
Patient & Public Involvement Lead – Mood Anxiety & Personality CAG and Psychological Medicine CAG
email: email@example.com tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ
Please find attached the final programme for the Carers Conference in Eating Disorders on Friday 22nd November along with a booking form.
Eating Disorders and Carers
5 Dorchester Way
07733 260 475
The specialist Mother and Baby Unit at the Bethlem Royal Hospital has been recognised as providing an example of “best practice” in caring for women suffering with severe mental illness during pregnancy or post-birth.
An NSPCC report released last week suggests the wellbeing of more than one in 10 newborn babies in England could be improved if all new mothers with mental illness had equal access to good services.
The report states there is evidence to show that the work carried out at the Channi Kumar Mother and Baby Unit, part of the South London and Maudsley NHS Foundation Trust, leads to significant improvements in mental state in approximately three quarters of women, in the sensitivity of mothers with schizophrenia and postpartum psychosis when interacting with their babies and major improvements in the interaction of the babies of mothers with schizophrenia, psychosis and depression.
The 13-bed unit was set up for women who develop or have a relapse of serious mental illness during pregnancy or following the birth of their baby. The unit offers a wide range of treatment, therapy and care which is not offered on the same scale in any other unit in the UK.
One unique factor is the work of a developmental psychologist who works closely with the mothers and infants.
Dr Susan Pawlby works clinically as a developmental psychologist at the unit and academically at the King’s College London’s Institute of Psychiatry.
She said: “I think our unit stands out because we have a developmental psychologist to work with nursery nurses and nurses on the ward and most other units do not have that.
“It means we can give mothers and infants more support in forming and maintaining this early and most fundamental relationship. We have developed video feedback interventions so that mothers can see how their babies respond to them. Together we watch video clips of play sessions, talk about the communication between the mother and her baby in order to help mothers develop their relationship with their baby.
“We systematically evaluate this intervention and see how effective it is. Our work is to encourage mothers to respond to their babies’ cues, so that mothers become more sensitive and babies more co-operative in their interaction with one another. I am delighted our work has been recognised by the NSPCC.”
Alongside this support, the Mother and Baby Unit also treats mothers with medication where needed. The unit also offers various forms of therapy (psychological, art psychotherapy, cognitive behavioural therapy and cognitive analytical therapy), life skills, health skills, leisure activities, baby massage and dance therapy.
Following the release of the report the NSPCC is calling on health ministers to lead a drive to address major gaps in access to mental health services for pregnant and new mums.
Mental health problems including depression, anxiety, postpartum psychosis, obsessive compulsive disorders, eating disorders , schizophrenia, post-traumatic stress disorderand personality disorder can begin or escalate when a woman is pregnant or in her infant’s first year. They can have a damaging effect on family life, and in the worst cases, impact on babies’ health and welfare.
Evidence shows that the vast majority of these illnesses are preventable and treatable, and with the right support, the negative effects on families can be avoided.
Sally Hogg, author of the NSPCC report, said: “The Mother and Baby Unit at Royal Bethlem Hospital provides excellent support for mothers suffering from perinatal mental illnesses and their babies. They do fantastic work to help mums to care for and bond with their babies, which helps ensure these children have the best possible start in life.
“It is crucial that more units like this are made available across the country for all families who need them, as without access to specialist units such as this some mothers don’t get the right help and can be separated from their babies, which is traumatic for the whole family.”
For more information on the NSPCC report:
Read Susan’s story here
#RT via Bridget via http://www.slam.nhs.uk
Don’t Call Me Crazy launches It’s A Mad World – a season of films on BBC Three looking at a range of mental health issues affecting young people in Britain today, from schizophrenia, OCD, eating disorders and self-harming to dealing with family members affected by mental illness.
#RT via Bridget