Summary of discussions – SLaM service user and carer advisory groups for mood, anxiety & personality disorder services, and emergency access, complex care and clinical neurosciences

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   2 of these groups produce a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.  

Mood, Anxiety & Personality services advisory group summary Jan 2014

psychological medicine advisory group summary -Jan 2014- doc

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ


Summary of discussions – SLaM service user and carer advisory group for emergency access and complex care services

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Psychological Medicine department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.  

PDF here: briefing – Nov 2013 – doc

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ

The Psychological Medicine Clinical Academic Group (CAG) runs services across the South London and Maudsley NHS Foundation Trust (SLaM). The services include emergency access services (such as home treatment services, A&E psychiatric liaison), complex care services (such as eating disorders, chronic fatigue, mother & baby services) and neurosciences services (such as brain injury). Advisory group members have experience of services either as service users or family members/carers.  We work with the senior managers to keep the views of service users & carers at the heart of all service developments and improvements.  To make sure that people know what we are discussing in our meetings, we have developed this short briefing sheet:

  1. Six people with experience of using services or being a family member/carer were present at the November meeting.  Also present were the managers of the 3 Triage Wards, the Patient & Public Involvement Lead and the Croydon Clinical Service lead.  Apologies were received from 3 service user/ carer consultants and 1 staff member.
  2. As agreed at the last meeting, the focus of this meeting was patient experience on Triage wards. We focussed on the improvement work happening on triage wards following the recent visits by group members. Initial visits were held in the Spring and follow up visits in October. Discussions focussed on the following areas:

Care planning

Members of our group will continue to advise the wards on developing a user friendly template for a care plan for people on a triage wards.  We will make sure that black/black british people are involved in developing this because they are currently significantly less likely to say they are satisfied with care planning.  One ward manager has designed a poster about care planning and she will share this with the other managers.

Food/Refreshments

The quality and quantity of food available has been raised as an issue.  There is a time-limited trustwide working group working with the food providers to make improvements.  Ward managers will ensure that complaints continue to be logged and forwarded.  They will also ensure that there is easy access to water 24 hours a day.

Community meetings

Group members advised that community meetings should be run by service users, but that staff should be present.  Patients should be able to read the notes from the meetings which should be presented in a clear, but accessible style.    Advisory group members will assist ward staff to develop the community meetings when the work on care planning has been completed.

Information

The group acknowledged that a lot of discussions focussed on patient information.  It was agreed that a time limited working group should be set up to develop a consistent approach to: developing ward induction packs, care planning folders, notice boards and ensuring adequate availability of appropriate leaflets

Satisfaction Questionnaires

The ward managers agreed to display ‘Thank You and Feedback’ posters, showing how the service will use patient feedback for improvements.

This work will continue to be monitored through the Triage pathway meetings, the governance management meeting and the service user & carer advisory group.

The advisory group thanked the ward managers for attending and offered continued support to their work to improve patient experience.

Views and comments from SLaM service users and carers on any of the above issues, as well as feedback on how you would like the Psychological Medicine Service User & Carer Advisory Group to develop its strategic work with SLaM, are welcome.  Please contact Alice Glover, Patient & Public Involvement Lead on 0203 228 0959  or email alice.glover@slam.nhs.uk


Mood, Anxiety & Personality Services – SLaM mental health service user and carer advisory group – summary of discussions – October 2013

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Mood, Anxiety & Personality (MAP) department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

PDF here: Briefing Sheet October 2013

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ

Service User and Carer Advisory Group : 

Supporting people who use Services for Mood, Anxiety & Personality Disorders, through collaborative work with Service Managers

The Service User and Carer Advisory Group is part of the Mood, Anxiety & Personality (MAP) Clinical Academic Group – an organisational structure which manages services for mood, anxiety & personality disorder across the South London & Maudsley NHS Foundation Trust (SLaM). Most advisory Group members have experience of using mental health services or of being a family member/carer of someone who does. Other members include senior managers.  We meet every month and our aim is to keep the views of service users at the heart of all service developments and improvements. To make sure that people know what we are discussing in our meetings we have developed this short briefing sheet:

1)    Seven service user/carer consultants were present at the October meeting, plus the Clinical Governance Project Officer, the Manager for Lambeth Services, the Deputy Director, the Patient & Public Involvement (PPI) Lead and the Trust-wide Strategic Lead for PPI.  Apologies were received from 8 service user/carer consultants and 1 staff member.

2)    We are interested in the process of discharge to primary care. We discussed the need for vigilance when people discharge themselves from services and that some people will disengage from services when their relationships with care co-ordinators are problematic.  We will have a more detailed discussion about this.

3)    In response to our advice, the PEDIC feedback posters have been amended to clarify that PEDIC relates to patient satisfaction.  We hope that this will encourage more people to fill in the questionnaires.

4)    In terms of the Trust-wide involvement structure we generally agreed that it would be good to have clearer lines of accountability, but highlighted the need to maintain the structures and good relationships that have developed in the CAGS.

5)    As agreed at our last meeting, a small group met to devise some objectives to improve reception areas. This follows on from the recent visits that we have made to reception areas for the MAP community teams.  Our next step will be to hold a workshop in November for staff, service users and carers to develop some action plans for improvements.

6)    Group members will be accompanying staff to check on the quality of services.  Our first step is to contribute to the set of questions that will be used.  A small group of us will get together to review the proposed set of questions and make suggestions for amendments or additions.

7)    We heard that improvements to the pathway for people with personality disorder will be integrated into the programme for changes to adult mental health services in general. This will include increasing the capacity for community mental health teams to offer treatment.  We highlighted the need to identify and support people with this diagnosis at the earliest possible stage.

8)    Group members have been involved in the development of the recurrent depression and bi-polar disorder pathway.  Service user consultants will facilitate some focus groups to find out how people are experiencing services now.  The plan is to provide psycho education and develop a network of expertise and interest.


Mood, Anxiety and Personality Services – SLaM mental health service user and carer advisory group – summary of discussions – August 2013

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments. The Mood, Anxiety & Personality (MAP) department advisory group produces a brief summary of their discussions. The purpose is to let interested people know what is being discussed.

An audio of the summary of the discussions from the meeting of the MAP CAG Service User and Carer Advisory Group for South London and Maudsley NHS by Matthew McKenzie – August 2013


Mood, Anxiety & Personality Services – SLaM mental health service user and carer advisory group – summary of discussions – September 2013

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Mood, Anxiety & Personality (MAP) department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ

The Service User and Carer Advisory Group is part of the Mood, Anxiety & Personality (MAP) Clinical Academic Group – an organisational structure which manages services for mood, anxiety & personality disorder across the South London & Maudsley NHS Foundation Trust (SLaM). Most advisory Group members have experience of using mental health services or of being a family member/carer of someone who does. Other members include senior managers.  We meet every month and our aim is to keep the views of service users at the heart of all service developments and improvements. To make sure that people know what we are discussing in our meetings we have developed this short briefing sheet:

1)    Ten service user/carer consultants were present at the September meeting, plus the Clinical Governance Project Officer, the Manager for Lewisham Services, the Manager for Southwark Services, and the Patient & Public Involvement Lead. Apologies were received from 5 service user/carer consultants and 3 staff members.

2)    Group members have been checking what it is like in reception areas of community teams.   We discussed their findings and agreed that it is important to make sure that real improvements arise from this work.  A smaller group will meet with the head of nursing to agree some overall objectives.  There will then be a workshop with service managers, advisory group members and receptionists to come up with local action plans to improve reception areas. We agreed that where training is recommended, it is important that service users and carers are involved in developing and delivering it.

3)    We heard about the initial findings of an audit of how people were discharged from Southwark Community Teams to primary care.  A group member has been involved in developing this work, in conjunction with the Southwark MIND User Council.  We noted the poor communication about discharge processes.  The next step will be to get some qualitative data by running some focus groups.

4)    We held a broader discussion about how services are set up, noting: ‘when you are getting better, you are at your most vulnerable as you are likely to have services reduced or removed. This promotes a culture where ill health is ‘rewarded’ with support’   We discussed a more flexible model where ‘the focus was on producing health rather than responding to illness and people using services were seen as assets with expertise as well as needs.’

5)    2 members fed back about the work they are doing around the personality disorder pathway. Key recommendations include:

  1. a.    people should be able to access what they need, at the point of need rather than signing up for a prescribed programme only
  2. b.    The emphasis should be on supporting wellbeing rather than crisis management
  3. c.    Services need to be realistic, financially viable and practical – perhaps a central hub – people may need to travel

There will be an outline paper for discussion and we have developed a plan to harness the views of a wider range of stakeholders to feed into the developments.

PDF version here: Briefing Sheet Sept 2013


Mood, Anxiety & Personality Services – SLaM mental health service user and carer advisory group – summary of discussions – August 2013

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Mood, Anxiety & Personality (MAP) department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ

The Service User and Carer Advisory Group is part of the Mood, Anxiety & Personality (MAP) Clinical Academic Group – an organisational structure which manages services for mood, anxiety & personality disorder across the South London & Maudsley NHS Foundation Trust (SLaM). Most advisory Group members have experience of using mental health services or of being a family member/carer of someone who does. Other members include senior managers.  We meet every month and our aim is to keep the views of service users at the heart of all service developments and improvements. To make sure that people know what we are discussing in our meetings we have developed this short briefing sheet:

1)    Six service user/carer consultants were present at the August meeting, plus the  Clinical Governance Project Officer, the Deputy Director and the Head of Pathways for Lambeth Community Services.  Apologies were received from 6 service user/carer consultants and one staff member.

2)    2 group members have met with the deputy director to generate ideas for the development of personality disorder services. This follows work from the recent steering group.

3)    A group member and the clinical governance officer presented their work to assess people’s experience of reception/waiting areas in community mental health teams/ resource centres. Some of the issues raised included the difficulties of talking through a glass barrier, the difficulties of old buildings, inconsistency of information displayed and quality of welcome.  The advisory group will offer feedback on the recommendations which will be discussed at a senior management meeting in September.

4)    We discussed ways to encourage teams to engage more people in completing  satisfaction questionnaires.  Some of our ideas included using peer supporters to get feedback, and giving people the opportunity to give feedback online.

5)    3 group members will be accompanying staff on visits to check the quality of services.

6)    We heard that the working group for patient information in psychological therapies services has completed the leaflet for people referred to the service.  It is now with the borough services which will be adding local information prior to printing. In September, the group will start work on a leaflet about different types of therapies and a welcome pack for people who have been assessed.

7)    The working group for service user experience in psychological therapies has finished an exercise to get wider feedback on proposed quality indicators for the service.  Members of the working group will present the quality indicators to staff at the Integrated Psychological Therapies Team operational meeting.

8)    2 members of the group have met with the Consultant Psychiatrist who is leading work to develop pathways for bi-polar and recurrent depression disorders.  They will be part of a steering group working on this.  Further work will include focus groups to start the process of understanding peoples experience of using services.

PDF here: Briefing Sheet August 2013


Mood, Anxiety & Personality Services – SLaM mental health service user and carer advisory group – summary of discussions – July 2013

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Mood, Anxiety & Personality (MAP) department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ

 

Service User and Carer Advisory Group : Supporting people who use Services for Mood, Anxiety & Personality

Disorders, through collaborative work with Service Managers

The Service User and Carer Advisory Group is part of the Mood, Anxiety & Personality (MAP) Clinical Academic Group – an organisational structure which manages services for mood, anxiety & personality disorder across the South London & Maudsley NHS Foundation Trust (SLaM). Most advisory Group members have experience of using mental health services or of being a family member/carer of someone who does. Other members include senior managers. We meet every month and our aim is to keep the views of service users at the heart of all service developments and improvements. To make sure that people know what we are discussing in our meetings we have developed this short briefing sheet:

Seven service users, one carer consultant were present, plus SLaM PPI Lead, Dep. Director, Psychiatrist (Affective Disorders), Clinical Governance Proj. Officer, and Head of Nursing

Proposed merger of Kings Health Partners (KHP) Organisations– update circulated

Personality Disorder Pathway Development Group– valuable work to date will form the basis of developing some broad suggestions to take to the strategic executive management meeting with input from Advisory Group members.

MAP CAG services presentation – a review of current services and new developments, including winning the retender for the Improving Access to Psychological Services in Lambeth and Croydon; restructuring borough-based psychological therapy teams; decommissioning two unviable inpatient units; and increasing beds in the Anxiety Disorder Unit. We heard about the proposed forthcoming work to redevelop the assessment & treatment services.  Stakeholder feedback will be part of the process to help improve access, assessment, treatment and patient experience (including out-of-hours support).  There will be a restructure of day services and the introduction of ‘re-ablement’ services, working towards social inclusion, personal budgets, specialist reviews of medication for people in primary care, co-production of care plans, and easy access to crisis and support services for people in primary care

Bi-polar pathwayKarine Macritchie, the new SLaM Consultant Psychiatrist for Affective Disorders will be working with Professor Allan Young to improve and develop the care pathway for people with bi-polar disorder. The aim is to develop research and improve clinical programmes at the same time.  Service User/Carer participation will be vital as the local networks develop and focus groups are held.  Alice will co-ordinate this ongoing involvement work.  Our thanks to Karine, who is welcome to come back to the group for an update

Discharge Audit – should be completed in the next few months. Reception Audit– complete and recommendations will go to Governance Executive Meeting in September.

Service Development Updates –consultation and focus groups have contributed to the development of the Integrated Psychological Therapies quality indicators, and a new information leaflet has been drafted.

Feedback was received from the Trustwide Involvement Group, the Family and Carers Listening Event, the Recovery College and the recent Peer Support Event.  It was all encouraging and further derails can be obtained by asking Alice (see below)

It was agreed that it could be a useful idea to hold a cross CAG advisory group meeting for all members of the adult mental health service user and carer advisory groups.

PDF version here: Briefing Sheet July 2013