Mood, Anxiety & Personality Services – SLaM mental health service user and carer advisory group – summary of discussions – October 2013

Hello all,

The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments.   The Mood, Anxiety & Personality (MAP) department advisory group produces a brief summary of their discussions.  The purpose  is to let interested people know what is being discussed.  Please circulate as appropriate.

PDF here: Briefing Sheet October 2013

With best wishes,

Alice

Alice Glover

Patient & Public Involvement LeadMood Anxiety & Personality CAG and Psychological Medicine CAG
email:  alice.glover@slam.nhs.uk tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ

Service User and Carer Advisory Group : 

Supporting people who use Services for Mood, Anxiety & Personality Disorders, through collaborative work with Service Managers

The Service User and Carer Advisory Group is part of the Mood, Anxiety & Personality (MAP) Clinical Academic Group – an organisational structure which manages services for mood, anxiety & personality disorder across the South London & Maudsley NHS Foundation Trust (SLaM). Most advisory Group members have experience of using mental health services or of being a family member/carer of someone who does. Other members include senior managers.  We meet every month and our aim is to keep the views of service users at the heart of all service developments and improvements. To make sure that people know what we are discussing in our meetings we have developed this short briefing sheet:

1)    Seven service user/carer consultants were present at the October meeting, plus the Clinical Governance Project Officer, the Manager for Lambeth Services, the Deputy Director, the Patient & Public Involvement (PPI) Lead and the Trust-wide Strategic Lead for PPI.  Apologies were received from 8 service user/carer consultants and 1 staff member.

2)    We are interested in the process of discharge to primary care. We discussed the need for vigilance when people discharge themselves from services and that some people will disengage from services when their relationships with care co-ordinators are problematic.  We will have a more detailed discussion about this.

3)    In response to our advice, the PEDIC feedback posters have been amended to clarify that PEDIC relates to patient satisfaction.  We hope that this will encourage more people to fill in the questionnaires.

4)    In terms of the Trust-wide involvement structure we generally agreed that it would be good to have clearer lines of accountability, but highlighted the need to maintain the structures and good relationships that have developed in the CAGS.

5)    As agreed at our last meeting, a small group met to devise some objectives to improve reception areas. This follows on from the recent visits that we have made to reception areas for the MAP community teams.  Our next step will be to hold a workshop in November for staff, service users and carers to develop some action plans for improvements.

6)    Group members will be accompanying staff to check on the quality of services.  Our first step is to contribute to the set of questions that will be used.  A small group of us will get together to review the proposed set of questions and make suggestions for amendments or additions.

7)    We heard that improvements to the pathway for people with personality disorder will be integrated into the programme for changes to adult mental health services in general. This will include increasing the capacity for community mental health teams to offer treatment.  We highlighted the need to identify and support people with this diagnosis at the earliest possible stage.

8)    Group members have been involved in the development of the recurrent depression and bi-polar disorder pathway.  Service user consultants will facilitate some focus groups to find out how people are experiencing services now.  The plan is to provide psycho education and develop a network of expertise and interest.

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