Please find below a link to the report from the consultation, i.e. from the focus groups, the information meetings and the written responses.
Statement from Southwark Council:
“Southwark Council and Clinical Commissioning Group (CCG) welcome the findings from the consultation on the future of mental health day opportunities in Southwark.
“This comprehensive and wide ranging programme of engagement led by Experts by
Experience has provided a rich and detailed response to the proposals set out in the original report. The analysis and accompanying report will shape and inform the development of the final model. We would like to express our gratitude to all those who commented on the consultation and to E by E for the effort and expertise they have brought to bear on this project and the helpful conclusions and insights that have emerged.”
Summary of discussions – SLaM service user and carer advisory group for mood, anxiety & personality disorder servicesPosted: December 10, 2013
The departments that manage the services at South London & Maudsely NHS Foundation Trust have ‘advisory groups’ where service users and carers come together to advise on and discuss developments. The Mood, Anxiety & Personality department advisory group produces a brief summary of their discussions. The purpose is to let interested people know what is being discussed. Please circulate as appropriate.
With best wishes,
Patient & Public Involvement Lead – Mood Anxiety & Personality CAG and Psychological Medicine CAG
email: email@example.com tel: 020 3228 0959
113 Denmark Hill |The Maudsley Hospital | Denmark Hill | London | SE5 8AZ
The Service User and Carer Advisory Group is part of the Mood, Anxiety & Personality (MAP) Clinical Academic Group – an organisational structure which manages services for mood, anxiety & personality disorder across the South London & Maudsley NHS Foundation Trust (SLaM). Most advisory Group members have experience of using mental health services or of being a family member/carer of someone who does. Other members include senior managers. We meet every month and our aim is to keep the views of service users at the heart of all service developments and improvements. To make sure that people know what we are discussing in our meetings we have developed this short briefing sheet:
1) Six service user/carer consultants were present at the November meeting, plus two Clinical Governance Project Officers, and the Patient & Public Involvement (PPI) Lead . Apologies were received from 7 service user/carer consultants and 4 staff members.
2) Following our interest in the process of discharge, we have arranged to continue our discussions with the Lambeth head of pathway in December. In January, we will also meet to discuss progress on the Southwark Discharge audit and recommendations to improve the implementation of the process.
3) We heard that the workshop with staff and advisory group members to improve reception areas was productive. Reception staff from all boroughs except Lewisham attended and action plans were developed. We will be monitoring progress in this area, and identifying any actions that can be developed across the clinical academic group. Group members found it interesting to hear the perspective of receptionists.
4) We agreed that group members would visit teams to talk to them about the importance of getting and using feedback from service users. Members that are interested in this work will first need to understand more about the current feedback system Patient Experience Data Intelligence Centre (PEDIC). We highlighted the fact that questionnaires are just one way of getting feedback and more qualitative information can be gained through focus groups or user forums.
5) 4 members of our group and other service user consultants will join staff to visit services to check on quality. 3 members of the group have contributed to the development of the checklist which will be used. The reviews will be reported back both to the advisory group and to management.
6) We heard how the work to develop the personality disorder pathway has been on hold while the appointment of the new clinical director has been finalised. The advisory group has asked to meet the new clinical director – Dr. Hugh Jones as soon as possible.
7) A group member has been involved in the engagement work to understand more about people’s experience of services if they have a diagnosis of bi-polar disorder or recurrent depression. A series of focus groups are being held, but it has been agreed that the engagement will be ongoing as the work is developed.
8) Advisory group members have been asked to try out the self assessment section of the new integrated health & social care assessment.
PDF here: Briefing Sheet November 2013
Hi Twig Ops,
Last Wednesday the Active Minds football group had a few select guests over for our training session.
Karthi Gnanasegaram came down with a Match of the Day film crew and was joined by Joel Ward of Crystal Palace FC to record a piece about the benefits of the football group Mind in Croydon run in partnership with the Crystal Palace Foundation.
They spoke to Michael Harrington of the Crystal Palace Foundation, Mind in Croydon Chief Executive Richard Pacitti and team captain Paul Richards all to a backdrop of our players displaying their ‘silky’ skills before Joel Ward joined us for a kickabout.
This went out on match of the Day last Sunday but for anyone who missed it there’s a link below
Active Minds – Mind in Croydon
Orchard House, 15a Purley Road
South Croydon, CR2 6EZ
t: 020 8253 8206
m: 07754 828053
Today Iain Duncan Smith is being questioned by the Commons work and pensions committee on universal credit, after finally admitting last week that the scheme’s targets had been “reset”. Last week, the petition calling for a cumulative impact assessment of the way welfare reform affects sick and disabled people, known as the WOW petition, passed 100,000 signatures, triggering its consideration for debate by the backbench business committee. To add to Duncan Smith’s woes, the well-respected Centre for Welfare Reform has released details of its report, How Norms Become Targets, which exposes the myth that Atos, the private company responsible for assessing the needs of people unable to work, does not do so on the basis of targets.
Today also sees the publication of the stunning People’s Review of the Work Capability Assessment (pdf). It has been compiled by the anonymous organisation, We Are Spartacus, whose activism in this area has been hugely empowering. The report is a collection of statistics surrounding welfare reform and reactions of MPs, charities and professional groups to the way in which it has been administered. An almanac of condemnation, if you will. Most importantly, the report compiles statements from sick and disabled people actually going through the system.
These are most encouraging developments and point to a sea-change in the way our democracy works in this internet age. There is no doubt that without extensive use of the internet and social media, the compilation of such a detailed report would have been impossible and its publication unnoticed. For too long, this group of most vulnerable people, many of them with serious health and mobility problems, have been too easy a target for cost-cutting governments of all hues to demonise, recalibrate and victimise. This is no longer the case. Vulnerable people have grabbed the issue by the scruff of the neck and are taking the fight to the government. It is inspirational and points the way to a level of democratisation hitherto unseen.
I encourage you to read the report. It is packed with striking statistics and heartrending stories, in the words of people being put through this inhuman and degrading assessment. It contains the stories of those who can no longer speak, having taken their own lives or succumbed to their illness, while being hounded by the very department which is meant to protect them, people like Peter whose leg fused as a result of injury and, having suffered a stroke which meant he couldn’t grip with one hand, received a text telling him to attend the Jobcentre. He sent his partner a text which read “I give up”. He was found hanging at his home.
It contains incredibly powerful quotes which show that dissatisfaction with Atos is spread across MPs of all parties. Dr Sarah Wollaston, the Conservative MP, said of the assessment procedure: “Not surprisingly, it adds to their [claimants] sense of worthlessness – already stoked by a longstanding political narrative from both sides of the political divide that they are ‘shirkers, not workers’ or a drain on Britain’s ‘hardworking people’. They are neither.”
It contains tragic and often simultaneously humorous stories of ridiculous assessment reports, like the one on a 59-year-old woman who had had a hysterectomy following cervical cancer, which observed: “There is no evidence that the client is currently pregnant.” Or the one which concluded that someone who took an overdose of medication the previous night had “no current thoughts of self harm”.
This programme of welfare reform was always doomed to fail for a very simple reason. The purpose of welfare is to provide a safety net for the most vulnerable; its reform must have their interests at heart, rather than cost-cutting targets. Proper reform costs money. Duncan Smith himself recognised this simple fact before he came into power. In 2009, explaining his proposed reforms, he recognised that they would lead to a rise in the welfare bill in the short-term.
Iain Duncan Smith’s fall from grace, because of a botched IT system which has already caused £140m to be written off, is properly a cause of both frustration and comedy – like Al Capone being arrested for tax evasion. But I must ask, we all must ask: how many of the vulnerable people mentioned in the Spartacus report would still be alive today if that money has been properly spent?
Our parental mental health team is appealing for donations of Christmas presents for vulnerable children.
The team works with some of the most vulnerable families in Southwark and want to make sure that all the children in the families they see receive at least one Christmas present this year. They are appealing for new toys suitable for children aged up to five years old.
Lucy Brazener, Team Manager, said: “Christmas is a time for celebration and we want to make sure that all the children we see have at least one present so they can enjoy it just as much as everyone else. Some of our families really don’t have very much and may be struggling.
“Toys are not only a way for a child to have fun; they stimulate them and help with their development and Christmas is a brilliant time to make sure that they have the toys and the fun they need.”
The parental mental health team is a nurse-led service, jointly run by South London and Maudsley NHS Foundation Trust (SLaM) and Southwark Council, which works to provide help and support for parents who have children under five and are experiencing mental distress.
The team recognises the needs of parents as individuals with mental health problems and the needs of their children. They aim to promote positive parenting and minimise the impact their mental health difficulties may have on their children through supporting the parent.
The team will see parents with a range of mental health problems and they often work jointly with other community teams and children’s services. This service is available for any Southwark parent and service users are referred from a variety of different health services.
Any donations should be sent by Friday 20 December to:
Parental Mental Health Team Christmas Appeal
For more information about the appeal or about referrals to the team please contact Lucy Brazener on firstname.lastname@example.org.
Want to know more! - Phone Valerie on a Monday
A fresh approach to Personalisation
Time: 1.30pm to 3.15pm
1st Monday of every month – General Meeting for All
2nd Monday of every month – Older Peoples Group
3rd Monday of every month – Mental Health & Well Being
At the Blackfriars Settlement.
1 Rushworth Street, London, SE1 0RB
Tel: 020 7928 9521 Fax: 020 7960 4682
Flyer here: 3 Supporters Club Dates Flyer 18 11 2013
In autumn 2014, the Bethlem Museum will be moving to the main administration block of the Bethlem Royal Hospital. The Museum will draw on an internationally recognised collection of archives, art and historic objects, covering 450 years of history.
Many items can be challenging to display and interpret, and we want to know what you think about our plans. On Thursday 12 December we will be looking particularly at ECT machines from our collection. If you have a view, or just want to find out more, please come along!
Email email@example.com for more information.
Thursday 12 December, 4-6pm
Bethlem Archives and Museum
Flyer here: ECT consultation