NHS Southwark CCG AGM – 11 September 2014

Dear All,

NHS Southwark CCG is holding its first Annual General Meeting as a new Clinical Commissioning Group. This will be taking place at 6pm on Thursday 11 September 2014 at our office which are located at 160 Tooley Street, SE1 2QH. Please do share this information with any friends or colleagues who would be interested too, a copy of the flyer for the event is attached.

NHS Southwark CCG AGM poster – 2013-14

At this event you will be able to hear presentations about

  • Primary and Community Care development by Dr Sian Howell (CCG Governing Body member) and
  • The changing health profile in Southwark by Dr Ruth Wallis (Head of Public Health for Lambeth and Southwark)

We do hope that you will be able to join us.

Membership, Engagement and Communications

NHS Southwark Clinical Commissioning Group

Postal Address: 1st Floor, Hub 5, PO Box 64529 London SE1P 5LX

Base: 160 Tooley St London SE1 2QH

Email: souccg.southwark-ccg@nhs.net

Telephone: 020 7525 7888

Media: 020 3049 3333

Out of Hours Media07876 448 602


Healthwatch Lewisham July Newsletter

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Upbeat 14, July 2014

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Healthwatch Lewisham aims to discover and champion the local community’s honest views about their health and social care services.

We present those views and feedback to service providers, commissioners and local decision makers in order to help improve services.

We are also a signposting service – helping you to find out what health and social care services are available locally.

 

Healthwatch Lewisham News

Healthwatch Lewisham awarded Outstanding Collaborative Project 

Healthwatch Lewisham along with 5 other South East London local watchdogs has won the award for Outstanding Collaborative Project at the national Healthwatch Network Awards of Achievement 2014.
click HERE for the press release.

Healthwatch Lewisham received two awards.  Our very own Denver Garrison won the award for Outstanding Healthwatch Volunteer and the South East London Healthwatch Network, The South East London Six won the award for the Outstanding Collaborative Project.

Denver said “I am pleasantly surprised to have won Healthwatch Volunteer of The Year 2014.
My journey with Healthwatch Lewisham began back in October 2013, when I saw one of their leaflets at my GP Surgery.

I read the flyer/leaflet, was impressed by what they do and why, and was really keen to get involved. When I got to the end of reading the flyer/leaflet, I read ‘would like to volunteer…’ and I got in touch immediately!

Since November 2013, I have been part of the Reference Groups, do Outreach work with the Lewisham Home Library service, am a trained Enter and View Representative, as well as being part of the Data Analysis Group.

I am really enjoying volunteering with Healthwatch Lewisham. It has given me confidence, and confirmation that my career change last year was the right one – I hope to go into Public Health in the future.

Special thanks to Miriam for nominating me! Thanks to Jade, Gary, and Simone, and  the volunteers I work alongside with in Data Workshops and at Engagement events and Forums.”

Enablement and Integrated Care

A vibrant event for community healthcare appreciative inquiry
What do we want? When do want it? How?

The best community healthcare is delivered by well trained and well paid staff, who are well supported and who have the time to offer patient cent red services, concluded an inquiry into community healthcare in Lewisham. It is also holistic, taking into account many aspects of the patient’s life and health. Central to successful delivery is cooperation between services, the voluntary sector and the community.

An Appreciative Inquiry was held on Saturday 28th of June to look at what excellent care looks like.

The Save Lewisham Hospital Campaign with Lewisham Healthwatch have been researching examples of excellent and good community care with the aim of supporting the best in and out of hospital care in the borough. Over 100 stories had been gathered from users, clinicians and managers to find out from people’s personal experience what are the key features, the magic ingredients that make good community healthcare so valuable.

You can read a summary report of the Appreciative Inquiry which includes key messages, themes and photos of the day HERE.

The Inquiry was presented to Commissioners South East London Commissioning Strategy Programme and Lewisham CCG at Healthwatch Lewisham’s fourth Your Voice Counts Event on the 29th of July. It was a success with over 60 people attending the day to talk about community health care and the South East London Commissioning Strategy Programme.

Local commissioners and programme staff attended to listen to local people’s views and experiences and engage the people of Lewisham in decision making around healthcare in the area. The resource pack from the day is now available on our website.

Mental health scheme to help Lewisham’s pupils ‘before they fall’

As mentioned previously Healthwatch is a partner in Lewisham’s bid for the ‘Fulfilling Lives: HeadStart Programme’. We now know that the bid was successful.

This  new mental health project will help school pupils in London to deal with their problems and worries after receiving a £500,000 grant from the Big Lottery Fund’s £75m HeadStart programme.
The development funding means that pupils in Lewisham will take part in a pilot project in the new school year. The local partnership will use this pilot to work up long term plans that could benefit from a multi-million pound share of HeadStart funding. for more details click HERE

Healthwatch Lewisham’s  local inquiry into discharge processes

Thank You !!

Our inquiry is now complete so a big thank you to all our supporters from the Voluntary and Community Sector for their participation especially the service users. We will publish our findings in the next bulletin.

A response to the Lewisham, Southwark and Lambeth Sexual Health Strategy

This is the joint response of Healthwatch Lambeth, Healthwatch Southwark and Healthwatch Lewisham. In each borough, the local Healthwatch is the independent voice of consumers of health and social care services.

In preparing this response, we have drawn on the experience of local Healthwatch members, who include both individuals and community organisations. We have also done some outreach work on sexual health among the public and professionals.

You may download the consultation as well as the response HERE… please note the consultation ends 31.07.2014

Local Health & Social Care News
Lewisham People’s Day 

“evening all”

Families came to the Healthwatch Stall to give their feedback about the local health and social care services in Lewisham. It wasn’t just adults that wanted to share their experiences, children also had the opportunity to tell us what they think. While mum was completing a feedback form we asked these two girls to draw us a picture of the services they use and to explain what they liked or didn’t like about their doctor or dentist. Both had good things to say this time!

If you work with a group of children or young people and would like to invite Healthwatch Lewisham along to engage with your group, please email: simone@healthwatchlewisham.co.uk

Living in Lewisham, caring for someone and not receiving any funded services

Then please call us on the number below to enquire if we are able to help you.  We have received funding for our self-referral service from Merchant Taylors’ Company to support carers living in the London Borough of Lewisham only who are not receiving any statutory funded services (Including Direct Payments/Individual Budgets)

Carers experience many different caring situations and you could be someone looking after a child/young person with a disability, caring for an elderly parent, supporting a partner or a neighbor or supporting a friend who may not have any extended family.

Carers often suffer ill-health due to their caring role. To support and maintain their own physical and mental health and well-being we can offer some much needed respite to support the person being cared and to make the carer’s role more manageable.

For further information about our self-referral service please contact
Sharon Hutton (Care Manager) on 01322 346979 or 07903 517253 or email on s.hutton@ccsel.org

Local Health & Social Care News

Mental health workers to help Met Police on call-outs

Police are to be given access to specialist staff 24 hours, seven-days-a-week, to support people with mental health problems.  A new one-year pilot scheme will be trialed by Met officers in Lambeth, Lewisham, Croydon and Southwark.

Click HERE for details

Sydenham Gardens examples of good practice 

Sydenham Garden is an award-winning charity providing gardening, nature conservation & creative opportunities for the well-being of local residents. Click on the links below for evaluations of their excellent work.

Annual evaluation of Dementia sessions (Sow & Grow) 2013/14
Annual evaluation of Adult Mental Health Gardening Groups 2013/14

Lewisham Mental Health Connection..News of their launch Party

Over 150 guests, both service users and staff members, enjoyed barbecue food and drinks, animal therapy provided by Animal Days Out,  indoor and outdoor games, art therapy and music.

See the Quo Vadis Trust website and the Equinox Care website for more details.
Please also visit the launch party gallery in meetup

Lewisham Mental Health Conference 2014 – register your place
Quo Vadis Trust and Equinox Care are co-sponsoring the Lewisham Mental Health Conference 2014, supported by Voluntary Action Lewisham. The conference is on Thursday 11th September at the Lewisham Civic Centre, 9.30am to 4pm. The conference theme is “connect, collaborate, celebrate” – the aim is to make the best use of available resources for mental health provision in Lewisham, benefiting both providers and service users.
Register today: mental health service users, commissioners, voluntary agencies and other providers are invited to register for a conference pass. For the full speaker line up, please visit the conference page on Eventbrite. A choice of 8 mental health workshops will be offered to delegates, offering a range of learning and interactive opportunities – registered delegates will be contacted by email prior to the conference in September, with details of workshops to choose from at the event.

For more information, please contact Charlotte Tarrant (charlotte.tarrant@equinoxcare.org.uk) or Natasha Kapadia (natasha.kapadia@equinoxcare.org.uk).

Click HERE for the Eventbrite link

IAPT Self Confidence Workshops for women

IAPT Lewisham will be holding Self- Confidence workshops over the next 6 weeks in September.

The self-confidence group starting in September will be held at 37 Marvels Lane Health Centre, Grove Park, SE12 9PN

The course is for 6 weeks and it will run from 11am-1pm – dates are listed below.

Tues 9th September
Tues 16th September
Tues 23rd September
Tues 30th September
Tues 7th October
Tues 14th October

The sessions aim to explore issues and develop skills related to:
Low mood and life pressure,
Stress and work
Heritage and identity,
Gender identity – what it means to be a woman,
Anger and assertiveness,
Relationships and communication,
Relaxation and healthy lifestyles.

Who is eligible:
1) Women aged 18 or above
2) Women experiencing any of the above

For more information please contact
mala.halai@slam.nhs.uk
Local Advice for London

This is a new site containing borough by borough social welfare resources click HERE for the Lewisham site

Working with Men

Working with Men is a specialist charity supporting positive male activity, engagement and involvement. The Young Father’s Initiative aims to remove the barriers that currently inhibit young fathers’ involvement in family life, to ensure that young fathers are informed and have the skills required to father their children well, to support children’s development, by supporting the active involvement of young fathers. WWM also provide professionals with information, advice and training to develop their work with young fathers.

The Expectant Father programme (EFP) is the longest running fully evaluated course of its kind and is only available through Working with Men. The one day course is an opportunity for men to reflect on the changes they will be going through whilst looking at the impact that a baby will have on their lives. The sessions are skills and discussion based, encouraging personal experience with demonstrations and exercises used to provoke reactions.

The programme consists of a 1 day course on a Saturday 10am-4pm thus making it more accessible for working expectant fathers. The programme is based on several theories including social learning; attachment and knowledge of child development, it is built around practical and reflective sessions, such as bathing and changing the baby with an emphasis on understanding both the importance of bonding and of being a father/ role model.

Contact: Anthony Graham 020 7237 5353 / 07810 789 294
Website: www.workingwithmen.org
Follow us: @workingwithmen1
Facebook: Working with men Facebook

Carers Lewisham – Young Carers Service

Click HERE for the latest flyer explaining the Young Carers Service

Lewisham & Greenwich NHS Trust seeking to appoint a Non-executive Director

There is a vacancy for a Non-executive Director of Lewisham & Greenwich NHS Trust. This is an exceptional opportunity to share your talents and expertise to make a positive difference to the lives of people in your community.

The Trust is responsible for providing services to the London Boroughs of Lewisham, the Royal Borough of Greenwich and Bexley. We comprise University Hospital Lewisham, Queen Elizabeth Hospital, Woolwich and a number of community settings across Lewisham.

In preparation for becoming an NHS Foundation Trust, Lewisham & Greenwich NHS Trust is seeking to appoint a Non-executive Director to its board.

For full details click HERE

NHS Bowel Cancer Screening 40.63% take up rate in Lewisham

More than 40,000 men and women are diagnosed with bowel cancer every year in the UK. The lifetime risk of developing bowel cancer is 1/14 for men and 1/19 for women, with 80% of cancers diagnosed in people over 60 years of age. The NHS Bowel Cancer Screening Programme invites people 60-74 years of age, to complete the Faecal Occult Blood Test (FOBT), in the comfort of their own home (also known as ‘poo test’). Most people who adequately complete and return the test kit will receive a negative result (not blood found in the sample) and be invited again in two years.  A positive test is not a diagnosis of cancer but a sign for further investigation. Information about the NHS Bowel Cancer Screening Programme can be found in many languages here http://www.cancerscreening.nhs.uk/bowel/

In Lewisham, 5204 out of the 12893 people invited in 2013 were adequately screened. This is a 40.63% uptake rate compared to the 60% target set by the NHS Cancer Screening Programmes. Challenges to FOBT uptake include social taboos around sampling faeces, a perceived hygienic risk, not understanding the instructions, and fear of consequences of positive results, according to a study published recently in the British Journal of Cancer. Read the study here http://www.nature.com/bjc/journal/v110/n7/full/bjc2014125a.html

Health professionals and the public may call 0800 707 6060 to request general programme information, instructions for completing the FOBT, replacement test kits, or order a test kit if they are over 74 years of age.

Service moves proposals at King’s College Hospital

• Elective inpatient orthopaedic surgery with the exception of paediatrics, limb reconstruction and complex procedures to be transferred from Denmark Hill to Orpington
• Elective inpatient gynaecology surgery from Denmark Hill to the Princess Royal University Hospital (PRUH)
• Non-complex cataract surgery to be transferred from Denmark Hill and PRUH to an expanded cataract facility at Queen Mary’s Hospital Sidcup (QMH)

For details of proposals and rationale for proposed moves of some services from Denmark Hill click HERE

South London and Maudsley psychiatric board to be investigated 

 

The board of an NHS foundation trust which delivers psychiatric care in south London is to be investigated.

South London and Maudsley NHS Foundation Trust’s board will be reviewed by health regulator Monitor.

For details click HERE

Londoners sought to be part of a new scrutiny panel

London Patients Voice (LPV) are currently recruiting a chair and up to 11 members to sit on a new London-wide group – London Patients Voice.The recruitment is being led by the Centre for Public Scrutiny please see the CfPS website for further information click HERE

National Health and Social Care News

 

Help us now – sign and share our petition to fight cuts to children and young people’s mental health services

Thousands of children and young people are under pressure and suffering everyday but can’t get the help they desperately need because mental health services are being cut across the country.

Please act now to stop children and young people’s mental health services from being cut.

Click HERE for more information and to sign the petition

See the Child Change the System

Children’s charity, Kids Company, this week launches a campaign called See the Child Change the System, which aims to rethink children’s social care and mental health services. The public are being asked to text or sign an online petition to put pressure on politicians to make lasting changes. Kids Company will announce a taskforce to create a completely new service structure in which children’s social care and child mental health services are brought together and the key for recovery is attachment to carers, which generates resilience. For details click HERE

NICE National Institute for Health and Care Excellence
A new film commissioned by the NICE collaborating centre for social care will help organisations and people use the quality standard on mental wellbeing of older people

Click HERE to see the video

Wheel of well being site  NOW LIVE!

Friday the 11th of July 2014 marked the launch of the wheel of Well-being website. More and more research is showing us how certain positive actions can improve our mood, reduce risk of depression, strengthen our relationships, keep us healthy and even add seven years to our lives.

At the heart of the Wheel of Well-being is the  website, a practical collection of free tips, tools, activities and ideas – from a DIY Happiness game to promote well-being at community events, to a Happier at Work programme to improve well-being in the workplace.

Consumer guides to making complaints about health and social care

Healthwatch England has published complaints guides for CAB’s for people wanting to make a complaint  about a health and social care service.
Click HERE for further information

Raising concerns about a nurse or midwife

Click HERE to see a leaflet from the Nursing and Midwifery Council. It describes what you can do if you are unhappy about the care you have received or witnesssed

London Regional Team Participation Opportunities

Over 65, carers, BME and LTC GP Focus group places available

The transformation of London’s general practice services is an agreed priority for the NHS in London. To help to understand the needs of patients and carers across London we are holding a series of focus groups with different community groups, patient groups, and users of GP services to help us understand the full range of needs.

A range of charities are also helping us run focus groups with particular groups of people such as people with sensory impairments, people with Alzheimer’s, Young people and people who are homeless, participants for these focus groups will be recruited separately by the charities who will work with us to ensure people are enabled and empowered to take part in the focus group.
If you would like to take part in any of the focus groups listed in this bulletin, please email s.frater@nhs.net or telephone us: (please note our numbers are changing , we apologies for any inconvenience caused)

0207 932 3196 until the 11th July and,
0113 807 0481 from the 14th July onwards
Travel expenses will be available for more details click HERE

Transport for all
 

Sick of Waiting – a new campaign on patient transport

Transport for All are asking for feedback about patient transport.
Click HERE for more information and to take part in the survey.

The GMC are holding a consultation event

One of our (GMC) key roles as a regulator is to investigate concerns about doctors and where necessary take action to protect patients.  That action includes issuing sanctions. These can take many forms. In serious cases where we find a doctor’s practice is impaired and we need to safeguard patients, we can erase that doctor from the register or suspend them from practice for a period of time. In less serious cases, we can issue warnings, which encourage doctors to change their behavior, or conditions, which restrict the way that a doctor practices (by requiring them to be supervised, for example).

We need to ensure these sanctions and the way that we apply them continue to meet the public’s expectations of how we should act as a regulator. We also need help from patients and doctors to consider a number of questions, including:

  • which types of allegations should result in the most serious sanctions?
  • Should a doctor always have the right to remediate?
  • Should we require doctors who have harmed patients to apologise?

We want to speak to a wide range of patients and patient groups, such as Healthwatch. The session would last up to two hours and would involve us explaining the consultation and getting your views.

Come along and have your say

Thursday 30 October at 12am–4.30pm
At General Medical Council London offices, Regent’s Place,
350 Euston Road, London NW1 3JN

12am–3.15pm: General Medical Council consultation event (Lunch included)
3.15–4.30pm: Healthwatch London meeting

For a place please contact George Bream:
Georgina.Bream@healthwatch.co.uk.

Don’t tell me the mental health system isn’t in crisis – I’ve been in it 

Vulnerable people like me are being put at risk by cuts to essential services, and I’ve already given up trying to get support

Read this article about the state of the mental health system by Sue Bailey, outgoing president of the Royal College of Psychiatrists. Click HERE

True costs of Mental Health

A new book entitled “Thrive” by Richard Layard and David M Clark examines the true costs of Mental Health and promotes the efficacy of psychological treatments.

Click HERE for the Independent’s book review

National Survivor User Network

NSUN network for mental health is an independent, service-user-led charity that connects people with experience of mental health issues to give us a stronger voice in shaping policy and services.

Lots of interesting articles in their latest newsletter click HERE
or see their website HERE

Use the links below for some very useful information from SLaM

Crisis leaflet for self harm
What to do in a mental health crisis
Slam’s work on personality disorder services

Let’s B Well is a community resources website aimed at providing information to people with mental illness, their carers and other healthcare professionals in the South East London area. Our information is updated regularly. We are funded by charitable organisations, primarily NHS’s Maudsley Charity.

Service moves proposals at King’s College Hospital

  • Elective inpatient orthopaedic surgery with the exception of paediatrics, limb reconstruction and complex procedures to be transferred from Denmark Hill to Orpington
    • Elective inpatient gynaecology surgery from Denmark Hill to the Princess Royal University Hospital (PRUH)
    • Non-complex cataract surgery to be transferred from Denmark Hill and PRUH to an expanded cataract facility at Queen Mary’s Hospital Sidcup (QMH)

    For details of proposals and rationale for proposed moves of some services from Denmark Hill click HERE

    South London and Maudsley psychiatric board to be investigated 

 

The board of an NHS foundation trust which delivers psychiatric care in south London is to be investigated.

South London and Maudsley NHS Foundation Trust’s board will be reviewed by health regulator Monitor.

For details click HERE

Londoners sought to be part of a new scrutiny panel

London Patients Voice (LPV) are currently recruiting a chair and up to 11 members to sit on a new London-wide group – London Patients Voice.The recruitment is being led by the Centre for Public Scrutiny please see the CfPS website for further information click HERE

Stay Connected

You can stay connected with Healthwatch Lewisham on Twitter or Facebook, by visiting our website, or by emailing us directly at info@healthwatchlewisham.co.uk. If you would like to speak to someone in person please call our office on 020 7998 7796.


Project Co-ordinator for new Paid Peer Mentor Network

Project Co-ordinator £25,437 – £28,737 [35 hours per week]

Hexagon is in the process of developing a new Southwark based Paid Peer Mentor Network in Mental Health following an award from Southwark’s Innovation Fund.  Once trained, Paid Peer Mentors will be matched with people who are moving from high support accommodation to more independent living and key aims will be to support wellbeing, reduce social isolation and enable people to maintain independent living.

We are now seeking a full Time Project Co-ordinator to lead the development of the network. The successful candidate will have experience of managing mental health, both long term and acute/crisis, either in a work setting or through direct lived experience. This is a unique opportunity to shape an exciting new project and candidates will need to demonstrate they

  • Can lead, support and develop others
  • Have excellent networking skills for partnership working
  • Have a high level of knowledge in recovery based approaches and mental well-being

Confirmation of appointment is subject to obtaining an acceptable Enhanced Disclosure from the Disclosure Barring Service. For an application pack, please visit our website at www.hexagon.org.uk. Information pack will be available from 1st August 2014

Closing Date: Monday 18th August 2014

Interview Date: Tuesday 2nd September 2014

For your information, Hexagon will shortly be seeking interest in the Paid Peer Mentor roles


Family Carers’ Workshop

Dear All

I have attached details of a Family Carers’ Workshop that Andre Geel and I are running on Saturday 11th October as outlined below. Please do pass this on to anyone who you think would be interested in attending. This workshop is for any family member looking after someone with a mental health illness. Many thanks. Best wishes Veronica

“MINDFULNESS AND MINDING-LESS”

A Skills Workshop for Family Carers

with

Andre Geel – Consultant Clinical Psychologist

&

Veronica Kamerling – Experienced Carer – Trainer

Saturday 11th October 2014

Registration: 09.00am Start: 0930 Finish: 16.30

The Fitzrovia Room, Park Crescent Conference Centre,

International Students House, 229 Great Portland Street London, W1W 5PN

Cost: £63.00 per person to include morning tea and coffee

BOOKING FORM FOR THE CARERS WORKSHOP SATURDAY 11th OCTOBER 2014

WORKSHOP FLYER FOR MINDFULNESS – MIND-LESS with Andre Geel 11th October…

Veronica Kamerling

Eating Disorders & Carers

01256 704117

07733 260 475

  1. eatingdisordersandcarers.co.uk
  2. londoncarersgroup.org.uk

 


Job Seeker Sanction Advice

A new website run by “a small network of 3 disgruntled ex- Department of Work and Pensions civil servants”, featuring advice on how to foil sanctions.

 

http://jobseekersanctionadvice.com/

Via Boycott Workfare


Mon 28th July at The Dragon Café

Create, Relate and Celebrate

Join us for a final Monday before we take a Summer break at the mid-point of The Dragon Cafe’s second year. Our Summer Medley will ensure there is music and movement through the day, but we also have opportunities to look closer at mental health care in Southwark with SLaM Presents at 2 pm, and developments in biomedical approaches in Research Works at 2.30 pm. In the evening you can get moving with VivArtista at 6.15 pm and a ‘flashmob’ style performance then join our Dragon for dance, drumming and celebration from 7 pm. Vive The Dragon Café!
PLEASE NOTE: we will be closed through August returning on Monday 1st September.

DC Programme- Monday 28 July 2014


Update re the future of our social media

Dear Subscribers,

We posted last month that funding would cease for our social media on 30th September: http://slamtwigops.wordpress.com/2014/07/07/funding-will-cease-for-our-social-media-in-less-than-3-months/

One of subscribers wrote in to the Trust as we requested, and Sarah Crack, from SLaM Comms, replied to them, copied to us. In Sarah’s email she said that the funding would now cease on Monday 8th September, almost a month earlier than we were told last month. We’re also concerned that a decision made by the Involvement team is being communicated to a third party, and by another bit of the organisation.

We wrote expressing our concern at this to SLaM on Monday 21st July, and on Thursday 24th July this new date was confirmed by Ray Johannsen-Chapman in the attached letter.

from Ray July 2014

We still can’t understand why they are closing our media before they have replacements in place.

SLaM has contested some of our posts, including us posting articles from the Guardian newspaper. We feel that this is over-cautious. All of us working in the variety of social media try to be very careful what we share with you and it would be good to know how you think we are doing. We don’t seek to take up an adversarial position with the Trust and we believe that everything that we post or send to you via our other social media is in the public interest.

Here are some excerpts from some of the emails we’ve received. It would be great if you could add your voice to them, and / or explore other avenues of funding for us to continue our work.

Best wishes,

D

Blog administrator

.

I’ve read that funding of the SLaM Involvement Forums’ online presence is due to stop in the near future.

I use your social media in several ways;

-                      as a member of SLaM and a former service user I continue to value my recovery and now I am no longer under services a large part of this is online. Whilst it is true that there is a vast amount of online information, blogs and social media around mental health I like things to be from a trusted and reliable source like SLaM (oh the joys of having paranoia in your diagnosisJ)

-                      In my work role I send  in details of events and activities that are coming up which I know reach people we would otherwise not come into contact with

-                      I hear about events which I may not be aware of and pass them onto our service users and disseminate them across my networks. I’m sure I’m not alone in doing this and this must extend the reach of the SLaM social media platforms far beyond the number of subscribers and visits.

People with a MH diagnosis are far less likely to use computers for a variety of reasons and I feel this decision moves them further from integration into the online community

I would be interested to know why, in an age where the power and importance of social media is growing by the day, funding has been taken from this resource.

.

I am writing to register my disappointment that the social media project SLAM TWIG Operations has had their funding cut.

In times where mental health services users’ benefits and services are being taken away, SLAM TWIGS was a beacon of light that gave hope through sharing opportunities and providing connections in a disconnecting world.

I, as a SLAM service user, found it invaluable in my recovery to move forward and not get lost in recovery’s no man land, where you pushed out of services with no signposts to help you on your way. SLAM TWIG provided some of those signposts.

Please reconsider your action.

.

I was very disappointed to find out that funding was to cease for the South London Involvement Forum.

I was directed towards the Forum earlier this year. I find their weekly digest full of useful information and details of all sorts of activities around the boroughs.

In particular I find their reports on the Hear Us meetings excellent. There must be an awful lot of effort put into them. I am not always able to attend the entire meeting and need the Forums detailed reports to find out what I missed and to clarify areas I did not understand.

I believe SLaM should be publicising the Forum as a resource rather than removing its funding. I find it far more useful than the displays of leaflets and posters around SLaM properties which can often be out of date.

.

I am a SLaM service user and member of the Involvement Register. I am writing to beg you to reconsider your decision to cut the funding from the service user blog. This is an invaluable form of social inclusion and involvement that myself and others benefit from everyday. If I am unable to get out of the house due to worsening of my condition, the blog keeps me informed and makes me feel connected to the community. When I am able to get involved, it offers me news and opportunities for bits of work, and also info about local groups, charities and advice. Mainly it is run by service users for service users so our views are represented and taken seriously.

I can’t believe the small amount it takes to run these services is deemed to be unnecessary. It will take away a valuable service and take away yet another small thing that improves the quality of my life.

I hope you take this view into account

.

Quite a shock about the possibility of having the funding discontinued for all of your great reporting online.

I particularly look forward to Matthew’s video analysis, for example.

I really appreciate receiving these regular email news bulletins from you, to inform me and keep me up to date with opportunities in ‘our’ community, and if at all possible would use a modest amount of my income to support you financially in the future to help you continue your good work.

This is a deserving cause alright.

Hoping to hear some better news..

.

I was really upset to see that the well established social media activities relating to TWIG are to cease. I know from the recent SLAM magazine that a larger social media body exists but I do not have a relationship with those postings and feel reluctant to form one.

D Rosier is a trusted, effective service user involvement expert and her judgment regarding the posts on TWIG which balance opportunities in work and education and socially as well as useful information regarding benefit changes and activities that highlight how people with lived experience of mental distress feel about their treatment.


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